I am so fed up of being in pain all the time. Usually i manage it with no trouble,but this morning it has got too much for me. WHat with trying to keep hubbybuoyed up for his angioplasty on Friday and the pain i have in my hands it has all got too much i had a bit of a crying binge. I know later it will be easier. Well i hope so anyway.
I don't really want to go back on steroids i really don't as i have come so far since the op. I am still losing weight and can move better even if i still can't walk far without feeling fatigued. My shoulders at the back and i hope it will be because of the painting i have done and not the remnants of the chest infection. Well thats my liottle rant and moan over and i hope you all have a lovely day.xxxxx
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sylvi
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I hear you, loud and clear. There's no rhyme nor reason sometimes is there? One day I can brush off the pain without giving it a second thought and the next just feel like 💩 and very sorry for myself.
It never used to be this way. 🤕😪
I just let myself feel how I feel these days. If my brain is saying cry, who am I to argue? 😖😫😩
It's not always an option, my children make me smile (and cry sometimes 😵) and my wife isn't one for tolerating self-pity. 😀 I love her all the same.
I hope your day improves, remember there are others who literally feel your pain and we all know the 'truth'!
Who cares what 'normies' think?! What do they know?
Thank you both very much i am sure when i have got dressed i will feel a bit brighter. I just get fed up with trying to do things and then suffer for it afterwards and that is someh=thing i know you both understand.xxxxx
Oh Sylvi God Bless you we all know how you feel this bloody RD does grind you down sometimes. It is good to have a cry now and again it does you good. I am sure it will pass as you are a very strong woman. Keep your chin up and take it easy today. Xx
Aww bless u I know the feeling well been in Spain with my sister all,last week had a lovely time knees and hand hardly bothered me now back home in agony with knee again and got my hand op Monday hope u feel better soon sweetie xx
Hi Sylvi, I fully understand you. The last two years they can't get my pain under control. It drivers me mad sometimes. I have had wrist surgery, feet surgery. I am on Sulfasalazine, mtx, prednisolone hydro, and the biological Humira. All the poison, hope you will soon feel some better sylvi, and I hope the angio will be succesfull for you hubby.
SYL U ALWAYS PULL BACK ONCE YA IN THAT FRAME OF MIND THEIR IS NO STOPPING YA and whats up with bob he not so good again. and i wanty a walk cos im boooored and the weather is rubish and i left me stuff out in the garden and its wet today
He keeps getting pains in his chest as he has a hiatus hernia,but the angioplasty he is having done Friday to check his heart to make sure there is nothing wrong there before they go any further and they have said if he needs a stent they will do it at the same time and boy is he worried and sensing the worst and i do my best to try and kepp him buoyed up while suffering at the same time. Old age doesn't come on its own darling.xzxxx
we should all be born at 85 and work our way back that way way we end up wetting ourselves and go out wetting ourselves and mid way inbitween we can give life some jip cos we know everything
Hi Sylvi, yes the pain is very draining,and we know it's there every day,sometimes worse, sometimes a bit better,very hard to try and explain to non sufferers, we tend to just say we're ok,because it's just easier.I hope your feeling a bit better now.Im sure hubby will be fine, my son had a heart attack four years ago, got 2 stents,monitored regularly,it's better to know,they can do marvellous things in these heart units.I bet your fence looks good,paying for it now though eh.Rainy old day here in Kent, sofa day and a film I think, with choccy supplies at hand.xxx
Feeling it, Sylvi. I realised the last few nights I've been going to sleep wondering how much pain I'll have and how stiff my hands will be in the morning. It hinders everything we do, doesn't it?
As for your husband's angioplasty - I'd have one in a shot, if I needed one. They are so slick and efficient these days and they were straight forward 20 years ago when I had anything to do with them professionally.
Thanks for sharing. I understand. Prayers for you and your husband. I just went off steroids. I know they are not good for me but it is the only way I have been able to feel relatively normal. Hard to hold my new grand baby.
They are very hard to get off them once your on them,so well done you for coming off them, They ars good for short term use,but not for long term use though.xxxx
Remember you have one another & us here too Sylvi. I hope all goes well on Friday for your hubby. Do remember they do it day in day out but I know just how it feels when it's your loved one they're doing it on. x
Just had pre-op done,what a palaver we were nearly an behind because the nurse had to rush down to A&E to do something emergancy. Have come back very tired and now i am sitting in my recliner resting.xxxx
In situations like that I know it's a pain but I tend to think the person with the emergency is in greater need, wouldn't want to be the one needing urgent treatment, puts things into perspective. Found out this morning my h needs yet another op now & if the reconstructive Surgeon is called away on an emergency again like last time I'll put that into force.... again!! Hope you're feeling a little better for your rest? x
Sorry to hear about Bobs heart problems, hope it can be sorted for him. Meanwhile have a good howl, always helps me getting the stress,out. Xxxx
Hi Sylvi, sorry your in so much pain. I hope it eases soon. I am still struggling with the chest infection so back to GP today. I also had a bit of an accident yesterday. I went to take my little dog out on his lead and a cat ran passed, my dog immediately tried to chase the cat and pulled me really hard. I caught my arm on the corner of the wall and cut it quite badly. I can't stand the sight of my own blood so a neighbour cleaned and dressed it. I should probably have gone to A & E. Since it happened my wrist has been absolute agony and swollen. Oh the joys xx
Mary darling please go to the doctors and get that wrist checked over darling. You might not have done nothing serious,but it is worth getting it checked out. I am not sure if my infection has gone yet. I hope you get it sorted darling.
I am still in agony and now i am not sure why. I know the weather has a fair bit to play in it as it is wet here. Even the ankle i broke two years ago hurts this morning. Hugs from me.xxxxx
Hi Sylvi well seen GP. She would have liked me to go to hospital but in the end decided to put me on another course of antibiotics plus 40mg of steroids, then back to see her in Friday. I am already in Ventolin and fostair for asthma. The wrist is more painful because of the trauma just above it. I had that redressed with steri strips and feels a little easier now. No MTX or statins fo now and that doesn't help with the RA. Oh well at least I am being looked after by the GP & nurse at the surgery. Hope you have had a better day xx
Morning darling i am glad you have been and got sorted and they are keepoing an eye on you. I have pain clinic this morning and they will get it full barrels, I will will the nurse who is my go to at the doctors as i am bringing up plegm so my chest infection hasn't gone. I have had another weird night with dreams so weird you wouldn't believe. I don't know about you i am sick of being ill.Hugs darling.xxx
Oh I feel for you, I hoe you get sorted very soon. I didn't realise just how poorly I was. It's that OD thing about getting on with it. I must say I had a better nights sleep. Take care Sylvi xx
Oh dear, bless you, that's not good,I had that 2 years running so thought I should try and get this sorted before it got to tat stage. I hope they get you sorted today, take care xx
I still hurt again this morning,i know its wet and that doesn't do me any favours.My ankle i broke two years ago is sore this morning as well as my back and hands. I have had trouble moving in bed during the night. Aww well pain pills taken and now i just have to sit to let them do their work. Hope you all have a pain free day.xxxxx
Why don't you want to go back on steroids,they are so good,my thought are I would rather good days and enjoy my life and be dead tomorrow,sorry if I sound morbid but that's how I feel
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Lonely, in pain and scared.......
Wish i didnt' feel so tired why do people not undertand I can't do what I always want to?
Long time no see!
Pain in my shoulders 
