Why must i always be in pain.......: I am so fed up of... - NRAS

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Why must i always be in pain.......

sylvi profile image
46 Replies

I am so fed up of being in pain all the time. Usually i manage it with no trouble,but this morning it has got too much for me. WHat with trying to keep hubbybuoyed up for his angioplasty on Friday  and the pain i have in my hands it has all got too much i had a bit of a crying binge. I know later it will be easier.  Well i hope so anyway.

I don't really want to go back on steroids i really don't as i have come so far since the op. I am still losing weight and can move better even if i still can't walk far without feeling fatigued.  My shoulders at the back and i hope it will be because of the painting i have done and not the remnants of the chest infection. Well thats my liottle rant and moan over and i hope you all have a lovely day.xxxxx

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sylvi profile image
sylvi
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46 Replies

Bless you I hope things get easier as the day goes on have you got the rain and damp weather today ! That always as the old bones playing up 

PFKAAde profile image
PFKAAde

Hi sylvi 

I hear you, loud and clear. There's no rhyme nor reason sometimes is there? One day I can brush off the pain without giving it a second thought and the next just feel like 💩 and very sorry for myself. 

It never used to be this way. 🤕😪

I just let myself feel how I feel these days. If my brain is saying cry, who am I to argue? 😖😫😩

It's not always an option, my children make me smile (and cry sometimes 😵) and my wife isn't one for tolerating self-pity. 😀 I love her all the same. 

I hope your day improves, remember there are others who literally feel your pain and we all know the 'truth'!

Who cares what 'normies' think?! What do they know?

😀

All the best.

Ade

sylvi profile image
sylvi

Thank you both very much i am sure when i have got dressed i will feel a bit brighter. I just get fed up with trying to do things and then suffer for it afterwards and that is someh=thing i know you both understand.xxxxx

Diddydriver profile image
Diddydriver

Oh Sylvi God Bless you we all know how you feel this bloody RD does grind you down sometimes. It is good to have a cry now and again it does you good. I am sure it will pass as you are a very strong woman. Keep your chin up and take it easy today. Xx

Deejojo profile image
Deejojo

Aww bless u I know the feeling well been in Spain with my sister all,last week had a lovely time knees and hand hardly bothered me now back home in agony with knee again and got my hand op Monday hope u feel better soon sweetie xx

Hi Sylvi, I fully understand you. The last two years they can't get my pain under control. It drivers me mad sometimes. I have had wrist surgery, feet surgery. I am on Sulfasalazine, mtx, prednisolone hydro, and the biological Humira. All the poison, hope you will soon feel some better sylvi, and I hope the angio will be succesfull for you hubby. 

XxxxBas

sylvi profile image
sylvi

Thank you very much,i have been and got dressed,still in pain,but getting there somehow.xxxx

minka profile image
minka

SYL U ALWAYS PULL BACK ONCE YA IN THAT FRAME OF MIND THEIR IS NO STOPPING YA and whats up with bob he not so good again. and i wanty a walk cos im boooored and the weather is rubish and i left me stuff out in the garden and its wet today

sylvi profile image
sylvi in reply to minka

He keeps getting pains in his chest as he has a hiatus hernia,but the angioplasty he is having done Friday  to check his heart to make sure there is nothing wrong there before they go any further and they have said if he needs a stent they will do it at the same time and boy is he worried and sensing the worst and i do my best to try and kepp him buoyed up while suffering at the same time. Old age doesn't come on its own darling.xzxxx

smithfield profile image
smithfield in reply to sylvi

Was it Betty Davis that said Old age is not for sissies.

Lot of truth in that.xx

minka profile image
minka

we should all be born at 85 and work our way back that way way we end up wetting ourselves and go out wetting ourselves and mid way inbitween we can give life some jip cos we know everything

sylvi profile image
sylvi in reply to minka

Ha ha ha ha ha. Not sure if i will make 85 darling.xxxx

allanah profile image
allanah

Stiff upper lip Sylvie lol 

Or bubble and get it out of your system lovely , I'd go for the second option! Hope hubby is ok on Friday . They will look after him x

sylvi profile image
sylvi in reply to allanah

I did have a bit of a howl this morning darling and yes i know they will look after him and thanks for the reassurance.xxxx

allanah profile image
allanah in reply to sylvi

It's all well and good me saying but  you know it's their bread and butter stuff . but I'm worried sick About my son who is having MRI today xx 

sylvi profile image
sylvi in reply to allanah

What for darling? xxx

allanah profile image
allanah in reply to sylvi

I could do with off loading so I might write s post, I'm having the worst time X 

sylvi profile image
sylvi in reply to allanah

Oh my darling you have had a tough year haven't you,sending hugs and i look forward to reading your post.xxxx

Hi Sylvi, yes the pain is very draining,and we know it's there every day,sometimes worse, sometimes a bit better,very hard to try and explain to non sufferers, we tend to just say we're ok,because it's just easier.I hope your feeling a bit better now.Im sure hubby will be fine, my son had a heart attack four years ago, got 2 stents,monitored regularly,it's better to know,they can do marvellous things in these heart units.I bet your fence looks good,paying for it now though eh.Rainy old day here in Kent, sofa day and a film I think, with choccy supplies at hand.xxx

Sanbanan profile image
Sanbanan

Awgh not good Sylvi. Hope things get a bit better for you.

Sending hugs x

MickeyJoints profile image
MickeyJoints

Feeling it, Sylvi. I realised the last few nights I've been going to sleep wondering how much pain I'll have and how stiff my hands will be in the morning. It hinders everything we do, doesn't it? 

As for your husband's angioplasty - I'd have one in a shot, if I needed one. They are so slick and efficient these days and they were straight forward 20 years ago when I had anything to do with them professionally. 

Keep pushing! 

LizaTal profile image
LizaTal

Thanks for sharing. I understand. Prayers for you and your husband. I just went off steroids. I know they are not good for me but it is the only way I have been able to feel relatively normal. Hard to hold my new grand baby.

Liza

sylvi profile image
sylvi in reply to LizaTal

They are very hard to get off them once your on them,so well done you for coming off them, They ars good for short term use,but not for long term use though.xxxx

nomoreheels profile image
nomoreheels

Remember you have one another & us here too Sylvi. I hope all goes well on Friday for your hubby. Do remember they do it day in day out but I know just how it feels when it's your loved one they're doing it on. x

sylvi profile image
sylvi in reply to nomoreheels

Just had pre-op done,what a palaver we were nearly an behind because the nurse had to rush down to A&E to do something emergancy. Have come back very tired and now i am sitting in my recliner resting.xxxx

smithfield profile image
smithfield in reply to sylvi

A friend had a stint put in best thing he ever did he has not looked back.

Hope it is the same for your husband.xx

nomoreheels profile image
nomoreheels in reply to sylvi

In situations like that I know it's a pain but I tend to think the person with the emergency is in greater need, wouldn't want to be the one needing urgent treatment, puts things into perspective. Found out this morning my h needs yet another op now & if the reconstructive Surgeon is called away on an emergency again like last time I'll put that into force.... again!! Hope you're feeling a little better for your rest? x

Sorry to hear about Bobs heart problems, hope it can be sorted for him.    Meanwhile have a good howl, always helps me getting the stress,out.    Xxxx

smithfield profile image
smithfield

I am having a weepy day. Come and join me I have plenty of tissues.

Sometimes it just gets to bloody much.

You will soon be on your scooter dressed in pink and cheering everyone up.xc

sylvi profile image
sylvi in reply to smithfield

Thanks for making me smile darling.xxxx

smithfield profile image
smithfield

Oh Kai not sure which end would be the worst.xx

smithfield profile image
smithfield

And don't forget the dribbling!!😱😱

Ginalboy profile image
Ginalboy

God bless you and if there is a god then ask him why he let you suffer !!

Give him my phone number if you reach the pearly gates before me. 

MaryTH profile image
MaryTH

Hi Sylvi, sorry your in so much pain. I hope it eases soon.  I am still struggling with the chest infection so back to GP today. I also had a bit of an accident yesterday. I went to take my little dog out on his lead and a cat ran passed, my dog immediately tried to chase the cat and pulled me really hard. I caught my arm on the corner of the wall and cut it quite badly. I can't stand the sight of my own blood so a neighbour cleaned and dressed it. I should probably have gone to A & E. Since it happened my wrist has been absolute agony and swollen. Oh the joys xx

Mary

sylvi profile image
sylvi in reply to MaryTH

Mary darling please go to the doctors and get that wrist checked over darling. You might not have done nothing serious,but it is worth getting it checked out.  I am not sure if my infection has gone yet. I hope you get it sorted darling.

  I am still in agony and now i am not sure why. I know the weather has a fair bit to play in it as it is wet here.  Even the ankle i broke two years ago hurts this morning. Hugs from me.xxxxx

MaryTH profile image
MaryTH in reply to MaryTH

Hi Sylvi well seen GP. She would have liked me to go to hospital but in the end decided to put me on another course of antibiotics plus 40mg of steroids, then back to see her in Friday.  I am already in Ventolin and fostair for asthma. The wrist is more painful because of the trauma just above it. I had that redressed with steri strips and feels a little easier now. No MTX or statins fo now and that doesn't help with the RA. Oh well at least I am being looked after by the GP & nurse at the surgery. Hope you have had a better day xx

Mary

sylvi profile image
sylvi in reply to MaryTH

Morning darling i am glad you have been and got sorted and they are keepoing an eye on you. I have pain clinic this morning and they will get it full barrels, I will will the nurse who is my go to at the doctors as i am bringing up plegm so my chest infection hasn't gone. I have had another weird night with dreams so weird you wouldn't believe. I don't know about you i am sick of being ill.Hugs darling.xxx

MaryTH profile image
MaryTH in reply to sylvi

Oh I feel for you, I hoe you get sorted very soon. I didn't realise just how poorly I was. It's that OD thing about getting on with it. I must say I had a better nights sleep. Take care Sylvi xx

Mary

sylvi profile image
sylvi in reply to MaryTH

Thank you darling,i think i have pneumonoia by the way i am feeling.xxxx

MaryTH profile image
MaryTH in reply to sylvi

Oh dear, bless you, that's not good,I had that 2 years running so thought I should try and get this sorted before it got to tat stage. I hope they get you sorted today, take care xx

sylvi profile image
sylvi in reply to MaryTH

Stronger antibiotics.xxx

sylvi profile image
sylvi

I still hurt  again this morning,i know its wet and that doesn't do me any favours.My ankle i broke two years ago is sore this morning as well as my back and hands. I have had trouble moving in bed during the night. Aww well pain pills taken and now i just have to sit to let them do their work. Hope you all have a pain free day.xxxxx

snis profile image
snis

Hi there it is tiring having pain daily snap!!!take care x

theaedge1 profile image
theaedge1

Why don't you want to go back on steroids,they are so good,my thought are I would rather good days and enjoy my life and be dead tomorrow,sorry if I sound morbid but that's how I feel

sylvi profile image
sylvi in reply to theaedge1

I have been on them for years and long term useage causes other problems.xxxx

sylvi profile image
sylvi in reply to theaedge1

Also the steroids put weight on which since the op i am losing.xxxx

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