New to the group. Been having unusual symptoms for almost ten years. Issues began with some numbness in my hands in 2005 or 2006. I have not been able to hold a phone to my ear for more than five years as my fingers start to go numb (have to use a head set). I've had periods where lifting my arms above my head has been problematic. I'm always waking up with something numb...fingers, hands, feet.
For over a year I have had mild to moderate shoulder pain in the right shoulder (left shoulder is fine).
For the most part, over the years, my symptoms have primarily been numbness. Only recently have I started having some pain in my fingers which gets worse when I squeeze things (once in a while my fingers with lock-up for a second and I have to reopen them and then they are fine.). For years I've chalked it up to nerve compression. I have scoliosis, a winged shoulder, and terrible posture...I figured nerve compression starting in the shoulders was causing the numbness in my hands.
I finally saw a Rheumatologist a few weeks ago. Everything was normal...(Sed Rate=2, CRP=0.5, neg for ANA, neg for lyme, RA factor=7.9) except for Anti CCP which was over 250. Oddly, my doc didn't seem that concerned. He thought if it were RA my other markers would be higher (plus I'm male, nonsmoker, no family members with RA so low risk). He wants to monitor and retest in three months. Seems odd given everything I've seen says if your highly anti ccp positive the horse has pretty much left the barn and you have RA. Made an appointment with another Rheumatologist but can't get into until mid January.
Have been very anxious and depressed since I got the news.