Got bloods sorted: Hi everyone, after reading your... - NRAS

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Got bloods sorted

Diddydriver profile image
5 Replies

Hi everyone, after reading your replays to me, I rang the rheumy advice ( what a lovely nurse she is ) she explained just what I needed to do regards my blood tests. My Drs surgery is now doing them but I have to sort them out myself ( not really a problem ) it is a good job I rang the nurse as she told me just what tests they were looking for and how often I needed them. I have now had 4 doses of MTX and thankfully I have not had a flair in my hands for 2 weeks. Maybe it is the steroid injection I was given I don't know but I am thankful for it anyway. My feet however seem to be getting worse, they are very hot and painful, apart from my toes seizing up I keep getting pain in the instep, I am not sure if this is RA or just cramp. Has anyone else have this problem??? I must say a big thanks to everyone who steered me in the right direction. I hope you all have a pain free day ( if there is one ) take care.

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Diddydriver
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babssara profile image
babssara

Hi Diddydriver, so glad you now know what you are doing. Doesn't it make all the difference to be informed? Hope everything continues to improve for you. I am following your post as I will also be interested in response to your feet as I am having same problem and don't know what it is.

Have a nice weekend. Babs x

Diddydriver profile image
Diddydriver

Hi babs, I will be asking my rheumy nurse when I go on19th October about my feet. Yes you are right in say that information is invaluable but it has taken me some time to get the answer to the questions I needed to ask. If it had not been for finding this forum I don't know how I would have coped. The people here are just amazing.

I will have a good weekend and plenty of rest for the next 6 weeks as I am a great rugby fan. My son played until he was 46 yrs myself and his dad got quite worried in the end as he got a lot of injuries. When I find out about my feet I will let you know what was said. Take care . X

babssara profile image
babssara in reply toDiddydriver

That's you sorted then. I will keep following your replies and do let me know how you get on (with the nurse and the rugby). Babs x

nomoreheels profile image
nomoreheels

I'm pleased you now know what is happening 're your drug monitoring tests. Your feet will hopefully improve given a little time. It sounds to me as though the MTX needs a few more weeks to have effect by which time your feet should start to feel better. I would think it's disease activity but if they don't improve do mention it at your next Rheumy appointment & make sure they're examined. Mine were left too long as my Rheumy insisted as they're not included in the DAS 28 her hands were tied & 2 years of undermedicating has caused damage. Have you been prescribed an NSAID? If so that should help with any specific inflammation you have & make things a bit more comfortable for you. If the pain doesn't ease please contact your Rheumy nurse.

Diddydriver profile image
Diddydriver

Thanks for your reply nomoreheels, I can't take NSAIDs as I also have Barrets Osophogus and can only take codeine. I just think I am dropping to bits. If I left my body to medical research the trainee drs wouldn't know where to start, hee hee.

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