Got bumped

[Someonesmother]

Well I got bumped from March for my neck fusion. I went of my biologic and was really suffering so I called them to find out what was going on. I got bumped but no one told me so I could have taken my biologic. grrrr. I have now. Nurse has 'pencilled' me in for April, but I am not holding my breath as I spoke to one of the admin ladies who said it may be September before I get a spot. I wish they would get their act together as my hands are hardly working now and the pain and numbness in my hands and arms is getting really bad. I can't drive for more than about 2 minutes now without my fingers going numb and eventually my hands, with lots of pain. Oh well I guess until I lose all the feeling completely it is not urgent.

[helixhelix]

Oh that's awful for you! Do you have a system of local politicians and local newspapers that you could use to stir up a fuss about people being left in pain and untreated for months? Because over the years it feels as if you have had dreadful medical care.

[Someonesmother in reply to helixhelix]

I think I am just incredibly unlucky hahahah I was talking with my sister as we had to sit for hours with my mother in A&E the other night, talking about when I fractured my heel on the Friday night of a long weekend. Went to the hospital and they xrayed and said nup just a sprain. Rang me 4 days later to say whoops the radiologist had reviewed the xray and I needed a CT as it looked like I had a fractured heel, but go elsewhere as ypou won;t get in for 6 months at the hospital. Um yep, no wonder I thought it was so painful walking around hahahah. 13 week in a moonboot. It just continues really. I can't do anything but wait I guess, but if it gets much worse I will make an appt with the specialist as my fingers are pretty much permanently numb now. Makes painting really hard as I do dot paintings and I have lost a lot of control.

[Hessie5]

So unacceptable! There is certainly an air of not caring I find from my drs in particularly. I try to work things out for myself and also put up with any pain I may feel as too stressful otherwise. Stay strong 😊

[Someonesmother in reply to Hessie5]

Thanks. Yes I know it is unacceptable, but when you are a public patient you have no choices. Sadly I am not rich to afford a private hospital, so I am stuck waiting. If it gets any worse I am definitely calling the surgeon to let him know.

[Nsmith13]

Yes it's not good I was went home with fractured hip it was shocking so was pain then rang me nxt day and sent ambulance and had hip replacement it was a fall that caused it, and my knee was kept in 6 was until this consultant was free to rebuild it as my bones to soft for replacement and then learn how to walk again about 3 mths later not good !!!!!!

[Someonesmother in reply to Nsmith13]

Oh that is dreadful. I hope you are OK now. You poor thing that is shocking.

[Nsmith13]

Yes I'm fine Thankyou but I often wonder if this caused my ra as I've heard severe trauma can trigger it ?????

[Someonesmother in reply to Nsmith13]

I developed mine after a hospital acquired infection after a hysterectomy. took months to clear it and then, boom, I just never seemed to be myself again.

[Nsmith13]

Yes it really does take it out of you in a big way it's a life changer , but at least I'm getting my head round it a bit now I understand all the symptoms and it's nice to share things on this page, with people in the same boat it's really helped me

[Someonesmother]

I'm glad. It is so hard at first then you get to acceptance that the life you had before is gone and you need to adapt. I started out with inflammatory arthritis, then sero neg RA and now to access a drug they thought may work, Psoriatic arthritis, although I have never had psoriasis. 6 years and I finally found something that is working to a degree! Yay

My daughter is currently starting down this road too, looks like she may have some sort of autoimmune issue.