Hi everyone : Hiya I had a Reclast infusion five months... - NRAS

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Hi everyone

sun_flower profile image
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Hiya I had a Reclast infusion five months ago and have had recurrent head pains ever since has anyone else found this ? hope you are all doing ok ,Maggie

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sun_flower
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EmmaS-NRAS profile image
EmmaS-NRASNRAS

Hi sun_flower,

I believe Reclast is normally used for osteoporosis however I'm sure a lot of people on HU have that in addition to their RA so hopefully they can comment further. Headaches are listed as one of the side effects of Reclast however I would suggest checking with your GP or rheumatologist if you are concerned at all.

Best wishes

Emma- NRAS

nomoreheels profile image
nomoreheels

Hiya Maggie. This is something I've been 'told' to prepare for if my latest DEXA scan reveals I qualify so I'm guessing as it's listed a a common side effect it's a regular occurrence? I suffer intermittent headaches anyway so not keen on possibly having more to contend with I must say! I was also informed by my Rheumy that I could very well have an intense period of suffering the same side effects as I've had on the two oral bisphosphonates I've tried, my main reason for questioning where I go from here.

Sorry I can't be of more help, a bit in the dark myself just now.

sun_flower profile image
sun_flower in reply to nomoreheels

thanks nomoreheels,I reckon they are down to the infusion,I might not have another one I will have to consider it,its really difficult I worry about haveing to have dental work done,I dont know how long it stays in the system for but I am a born worrier anyway,best wishes with your decision[Maggie

wurzelsepp profile image
wurzelsepp

I to had a Replast infusion about a week ago...had a terrible headache(still do) and felt like I had the flu for at least 3 days, also upset stomach and muscelpain...don't think I want to do it again

sun_flower profile image
sun_flower

Hello l had two a year apart and was due for a 3rd last year but my kidneys had deteriated quite a lot and as my bones had impoved the consultant didn't recommend another l now have CKD stage 3 the Reclast is not a pleasant thing to have and it also affects any dental work needed luckily l didn't but think hard the 1st one l had a terrible headache and flu like symptoms but the 2nd was fine good luck

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