I went to see the nurse at my Rheumy Clinic this morning as I needed to have my blood tests updated and she wanted to have a chat with me. I am ready to start the above infusions and then to have it in injection form asap. I was told their could be a delay due to having a shortage of beds at the local hospital where I would need to go to have the infusions. I was also told that the clinic is doing everything they can do to get me an appointment asap.
The flare ups are really bad and the side effects from the steroids are getting worse.
Fingers crossed (painfully) I can start the infusions asap and start to reduce the steroids asap and I will be a very happy bunny as the feedback I have received so far has been all positive from various people on this web site who have been on the above infusion from just a couple of weeks and some for several years. I want to visit my family overseas but my legs and feet especially, are very swollen which as far as I know would make it difficult for me to fly.
At least I now know I have been approved for the infusion.
Thanks everyone who gave me the support and advice on Tocilzumab that I needed.