Feeling yuk!

[Crazyjo]

Found since been on abatacept infusion the joint pain had decrease in some area of my body but I still feel unwell everyday. Find it so hard to find positives when feel like got flu like symptoms half the time. Feeling totally wiped out!

[nomoreheels]

Sorry to hear this Jo. Do you Rheumy team think it's normal & will it ease once you're used to it? x

[Crazyjo in reply to nomoreheels]

Not sure. I have das re score next month so will see what they say then x

[allanah]

I would tell your rheumy team. It may be the Abatacept is not quite controlling your inflammation or it may not quite suit you. I think maybe its worth a chat? really hope it kicks in soon its been a long job. xx

[Crazyjo in reply to allanah]

I have my infusion tomorrow and see them for das re score 13th of April so will see what they say then. Just so fed up of this long slow road. I wondering as I feel so crap apart from the pain if I got something else going on x

[allanah in reply to Crazyjo]

Yes, it does make you wonder if it's suiting you but that's great you can talk to them tomortow during your infusion. Maybe it just needs a bit more time? Good luck tomorrow xx

[Crazyjo in reply to allanah]

Had infusion ok got them to check my bloods and crp etc was raised so that would follow with me being crap. Will see what happens on my re score next month x

[allanah in reply to Crazyjo]

Let's hope the drugs will improve things for you, such a long haul for you so far . Thinking if you xx