Our youngest daughter is getting married on Saturday in a very unusual venue (can't say where just yet, sworn to secrecy). I am so looking forward to it and hoping that we don't have too much snow. The actual wedding is at 2pm with reception following, then big party in the evening.
However, I am in middle of ghastly flare, just about all my joints hurting badly, feet horribly swollen. Also, the horrible rash I have been suffering on the upper half of my body is still there, driving me mad with itching and looking as bad as ever. I got my wedding outfit about three months ago, but have had to go and buy completely different one in order to cover the rash. I was going to wear a dress but felt very self conscious due to my swollen knees and ankles, so have abandoned that idea and now wearing trousers and a jacket.
There is quite a lot of walking to get from car to venue so will have to use my wheelchair, then hopefully I can then use my new swanky new silver grey sticks once I am in the building. My daughter and bridesmaids are getting ready at this most unusual venue and in order to get to see them before they enter the venue entails me climbing up two steep flights of stairs. It's breaking my heart because that is impossible for me. There is no lift. So I shall not be able to do my mother of the bride duty and check them all over beforehand! I am determined to enjoy this lovely day, but there are so many logistical difficulties for me to deal with, not least being so exhausted that finding the energy to keep going through a very long day will be a bit of an ordeal.
I will post a picture on Sunday and then I can reveal the venue as well.
In the meanwhile I am waiting for Rheumy appointment to discuss all the tests which I have had recently, x Rays, bloods and dermatologist appointment and biopsies. I am only on painkillers at moment, hence this ghastly flare, so my appointment can't come soon enough.
The dermatologist gave me four different lots of creams and lotions for my skin, and she did say she thought it might be lupus,,but that it is possible to get similar rashes with RA so I am non the wiser !!!!