Just a bit of an update really. Since by massive moan last time I have now transferred hospitals and the Rheumatology team are completely different...they have been really fantastic and are so on top of things I never have to chase them. I've since put in a complaint about the previous consultant who left me not knowing what was going on and was generally useless (in my opinion!).
I've now started on Methotrexate and still taking the Hydroxychloroquine and weaning down the Prednisolone. Unfortunately my ALT came back as 149 this week!!!! So having to skip a dose of MTX but the nurse has called me several times to update and reassure me so although not great feel a lot happier than before.
I also had steroid injections in both knees and one wrist a week ago and although not fun at the time they have made a huuuuuuuuuge difference. Am planning on going back to work Wednesday after over a month off yaaay!
So mixed feelings really...concerned about my liver function tests and the MTX, anxious to get the medications sorted, pleased with the steroid injections and to see my knees again, excited to go back to wok (never thought I'd say that haha), relieved I now have confidence in the Rheumatology team, hopeful for a sunny day haha...maybe hoping for a sunny day is asking too much!
Hope everyone else is battling through.