I am so sorry for calling off from meet the patients at the Scottish Parliment Office this Thursday I am really struggling with this chest infection and flare ups out of control , I was so looking forward to meeting Laura and some of H/U members along with the Scotish MPs. I would really appreciate feedback of the event. matt
Sorry for calling off.: I am so sorry for calling off... - NRAS
Sorry for calling off.
Yes, me too. Frustrated not being able to go, but I want to avoid public places until I've had my two infusions! Hope you feel better soon Matt
I'm sorry that you can't go, I will let you know how it goes. Hope you get better soon! M x
Oh Matt, did u get in touch with them about how ill you have been and what they r gonna do till your biologics start and kick in !?
Hi A, Yes I did no answer from anyone no let up on the RA side and my ribcage and my back is painful , The day bed area is part of the Victoria wing in the WGH hospital that was on fire last week there was one fatality that could be holding it up. Matt
This is the one place people understand the need to call things off more than anyone dont worry we all get it xx
Shame you aren't well enough to attend Matt - it would have been good for the MSPs to see how badly RA and other issues can affect a person face to face. But of course better by far that you conserve your energy and don't risk getting any more sick by going. I'm too far away to go but hoping it's a success. Good luck to all. Tx