Anyone on H/U going to the Scottish Parliament.

[mattcass]

I am going to the Scottish Parliament on Jan 29th for a Scottish MP's meet NRAS patients at 1.00pm till 2.30pm is there anybody else going it would be great to meet other H/Unlockers. Matt

[miss]

Hi Matt hope you have a productive time of it. Please let us know how you got on. Will look forward to hearing all about it xx

[allanah]

Brilliant! Get them sorted out!! X

[nomoreheels]

Too far away for me Matt but if you're intending to report back to us I'd be interested to read how it went.

[cathie]

I didn't know about this, but m not well enough, it'd be great to have feedback though. It'd be good to have the chance to talk about priorities eg. As far as I know there's no hydrotherapy facilities in edinburgh. The emergency helpline doesn't seem to have been restored at the western general despite assurances. There's much more. Thanks for telling us about it

C

[Hidden]

Hi Matt,

I look forward to meeting you at the event on the 29th January.

The event aims to allow RA patients to meet with Members of the Scottish Parliament and raise awareness and understanding of RA amongst politicians.

There are still a few places available if anyone would like to attend. Please get in touch with me at [e-mail] or on 0845 458 3969 for more information.

Thanks,

Laura

Senior Government Affairs Officer, NRAS

[IainM in reply to Hidden]

I didnt know about this but would like to attend, I would need to have my wife with me as I'm not well enough to drive just now

[Hidden in reply to IainM]

Hi IainM,

Please would you be able to drop me an email at [e-mail] so I can try and sort this out for you?

Thanks,

Laura, NRAS

[IainM in reply to Hidden]

Thats it done Laura

[Rockpool60]

Hi

I am going to Scottish Parliament on the 29th and taking my husband as not great at driving just now.

Fiona

[IainM in reply to Rockpool60]

Hope to see you there

[Man_Oeuvre]

Yes I'm going. Look forward to seeing you there.

Cathie, I've just finished a course of hydrotherapy at the Western, referred via Rh unit and physio.

John.

[Hidden]

Wow Matt that sounds fantastic. Unfortunately I live in a England. Hope you all have a great session. How is your hand and wrist today?

Kikideelili x

[mattcass in reply to Hidden]

Hi Kikideelili, Funny enough they are not bad today thank you. matt

[hatshepsut]

Yes, I will be there . Perhaps we could have a coffee afterwards? M x

[IainM]

Can I ask where the info on this is as I cant seem to find it on NRAS site or anywhere else, Cheers

[mattcass in reply to IainM]

Hi IainM contact Laura_NRAS or if you PM me I can send you the e-mails I have with the info you require. matt

[IainM in reply to mattcass]

Hi Matt I emailed Laura and I got an email back from them, just waiting on info, going with my wife, so I will see you there, good to see you have an ex police springer, I have 2

[hatshepsut]

Would be a good chance to talk about the proposed Glasgow group. M x

[IainM in reply to hatshepsut]

Yes definitely I have asked about the set up of this a few times, would be good to get it up and running sometime soon, hope your well

[Ali_H]

Sorry I'm too far south (Midlands) but please have a productive afternoon on our behalf!

Good luck

Ali

[digger1]

Hi would love to go im from fife, gonna try and swing a holiday from work

[IainM in reply to digger1]

Its a great opoertunity to talk to them head on

[Slinkymalinky]

Hi I didn't know about this but would love to attend. Am I West Lothian so quite close. Would probably need my husband to come with me as well.

Joanne

[allanah]

Wish I could come but a bit too sore with the legs at the moment, sounds like a great event with lovely people going x

[mattcass in reply to allanah]

Hi A, Let's hope my health improves I know things are moving on now but honestly I don't know how much more I can take pain wise sitting here crying severe pain on both wrists and now elbow's, A if there's a god out there he is not listening to me going to contact Rheummy see if there's something he can do. Matt

[allanah in reply to mattcass]

Good ring them this morning. U should not have to be in this pain and remind him you need help as the biologicals can take three month to work , so you need something between then and now x

[January04]

Hello Matt - I am going too so see you there. Sandra

[IainM in reply to January04]

Hope to see you all there wont know who is who as half of you dont have pictures lol, Ill be looking for wee white cartoon men with coloured halos behind them

[nomoreheels in reply to IainM]

Lol! You seem more chipper! Are we getting the old Iain back a little?!

[IainM in reply to nomoreheels]

Hi Paula yes feeling a bit brighter today, was awful yesterday, just taking it one day at a time, how are you? X

[nomoreheels in reply to IainM]

A bit up & downy then? Do you think the tocilizumab is working, even if slowly slowly? I'm very achy today, not sure why unless I'm coming down with a cold, had a bunged up nose this morning. My muscles ache but that's down to statins. Had a word with a Receptionist yesterday & she's asked my GP to change it to another, one we discussed at the last pain med review when she said she'd change it but I stupidly said I'd see if I could cope. I can't, it's worsened & now my legs have joined in. Otherwise quite tickets boo thanks, the odd nadge, nothing new! x

[IainM in reply to nomoreheels]

At this point yes up and down,;slowly having a bit more movement in my arms, but still horrible pain in shoulders and biceps or whats left of them due to muscle wastage, yes I think there is minor improvements which are very minor, so yes I think it is helping, although I was told that it maybe just the flare subsiding, either way I do have more decent days than before. Watch out, a lot of bad colfs around flooring people so a hot bath and a hot Toddy is on order hope it doesn't turn into anything xx

[nomoreheels in reply to IainM]

Oh I hope it is working, though it will be difficult determining I'm sure. Gentle muscle building exercises when you have better days? Only you know if that's thing to do but I know muscle pain at the mo, statins not agreeing with me!

It's the season for colds, you can't avoid them unless living in a bubble! Bought a lemon today so having a honey, lemon & hot water just now. Unfortunately no bath, can't get in or out without help & h can't do that just yet so I'll settle for a night in front of the fire! x