I was the only person on hospital transport as it was rather an ungodly hour I needed to be picked up. It was nice to see the misty autumn fields in the morning sun on the way there. I got there early but after making sure they knew I needed 'the best canulator you have' because of my terrible veins and worse vein phobia I was set up. It does take a long time - saline flush- prednisolone drip - Rituximab for four hours - saline flush. I discovered the chair had electric controls so had a bit of a snooze. Also ended up getting totally stuffed with hospital food, the last hospital I was at gave us sandwiches and a yoghurt, this one gives you Cup-a-soup to start with. I thought huh stingy NHS only giving us Cup-a-soup for lunch, then they brought on the big plates of hot food then hot pudding and custard! I was pogged.
By the time the infusion was over I was feeling spaced out and a little shaky. The transport driver took me down to the bus in a wheelchair which I wasn't expecting! I got home, had a hot drink then had a sleep for a few hours. I felt a bit wrung out and was stuck between part of my brain telling me I wasn't hungry and the steroids saying 'eeattt fooood nooow...'. Then I got the steroid zoomies and ran round washing up and tidying. I couldn't get to sleep until 6.30 am! I also had a weird soapy taste in my mouth. Mentally I was a bit worn too, it is hard for someone with social anxiety to be stuck in a small room with lots of strangers for hours.
I'm enjoying my little steroid holiday window, I know it won't last long but it gives me some sort of idea how I would be if the treatment works, my knees aren't too bad, it seems to be more tendons and weak muscles than bone damage causing my current pain, all the inflammation pain has gone for now. It gives me hope for the future that I could get walking more normally again. I feel fine now, not at all washed out or tired.