Lost is the word. I have been a victim of a rare form of arthritis caused by auto immune disease it's kind of a mixture of Ra and ankylosing spondilititis . I would say survivor but I think it has gotten the best of me. It all started 11 yrs ago I went 4 yrs undiagnosed because I was having heart problems and the docs want to concentrate on that first, even when it got to the point I could barely walk. I finally had enough and went to the Mayo Clinic in Scottsdale AZ. Within 3 months was diagnosed with vasal vagal for the heart and sacrolititis left side for my walking problem. They did a steroid shot but no relief. I went 4 yrs in remission after taking naproxen and pain killers for the very few flare ups. Then the right side hit not as bad as the left but still to a point I couldn't move muscle without crying. That is when they start biologic meds. They help but it would have literally killed me from the side affects. This goes on for about 3 yrs. But throughout all this thing all my blood work comes back normal and imagining shows no inflammation but severe erosion. Then 1 1/2 yrs ago I started losing feeling in my feet and had severe pain in my legs. Turns out that I now have poly neuropathy because the arthritis moved into my first four vertebrae. They did 21 steroid shots in 9 months with no help. Then they burned the nerves on left side faucets. I got 1 month of severe pain and 1 1/2 months of relief now I'm suppose to get my right side done but what is the point if it only gives such little results and my leg pain still makes me uncomfortable. Then 3 months ago I started to get really tired like I can't do anything to stay awake. My short term memory is shot. Then two weeks ago I started getting burning sensations randomly throughout my body. I feel like my disease has won and it is only a matter of time before it finishes the job. My docs don't know what to do and then make me feel like it is all in my head but I know the pain is real. I just don't know where to turn. My wife and kids are here for me but it seems like my other family member don't fully understand the extent of the pain. I tell them I can't do things like I use to and I feel as if they think I'm a drama king. I try and do family functions but I am still currently working and I always cancel on them cause I'm just plain tired and wore out. The pain has trippled in the last month and feel like my body is slow shutting down with no medical explanation. So like I said I fight for my family but feel as if I'm losing. I'm defeated and lost....
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