I am not feeling my best at the moment,pretty ropey really .I am struggling with the MTX side effects, mostly the constant sweating even when I am cold I still sweat,it is unbearable and I am not going to inject tomorrow as I feel so bad,it’s after a usual night of sweats but the difference is ,husband opened window and when I sweat I throw cover off ,then fall asleep and wake up with freezing arms and chest let alone the rest which is just plain chilly. The pain in my freezing limbs is excruciating and it usually takes about 12 hours before I can warm up enough to feel “normal “ whatever that is.Today I have felt so bad as I am just recovering from about 3weeks of a really bad chesty cough (not dreaded c word) which has not helped matters,but feeling like life’s not worth living at the moment .I know I will get past this feeling when my health returns , but I need a plan of action to resolve the constant sweating. I have tried fairly recently changing to leflunimide (read my posts) but had to change back when my psoriasis got really bad so chose to go back on the MTX . Now I know why I decided to try another drug . When I saw my consultant I had been back on MTX for about 3weeks and everything seemed ok so she doesn’t want to see me for a year unless I am having problems. What wiil she likely do for me? Has anyone else been in this situation before? What did you do ? Is there another drug to try? Has anyone just stopped the meds , what happened? Lot of questions I know but I am at my wits end. Thanks for reading this long and boring post .Thanks in advance for any reply’s.
Where do I go from here? : I am not feeling my best at... - NRAS
Where do I go from here?
You are not alone on this I had phases of horrendous sweating then it tails off for awhile then comes back and god help a GP who brings up the menopause word at me ........
Recognising you have it and then getting someone to assist you can be tricky as my consultant swears blind its not RA but why do so many on here have it and seen as an RA symptom by many RA consultants as well.
I layer a lot and spend a lot of time on and off and duvet on and off but weighted blanket helped for staying asleep but also VIT D can also be a huge thing as makes you sweat if levels low so worth getting a blood test done to checks etc with your GP.
So I don't have any great ideas just reaching out to say its awful and I get it. I am now on jak barcitnib but I am not getting the sweats as bad BUT I do have phases and always take VIt D now and get it checked to make sure as well.
😘
Oh dear. Have you had your chest checked out? Are you,on Folic acid?
I get the sweats but it’s not the mtx it’s the disease for me. Disease is active and the sweats are disabling. I have them at the moment
The sweats are horrible, I have them too but I think it's the RA. I had an optician's appt last week and I was so embarrassed, my hair was soaked through by the end of it and it looked like I needed a good wash!! The mtx makes me feel like hell even though I'm only on 15mg subcut, nausea, the trots, etc etc but nothing else has been as good so far at reducing the flares. Good luck finding a solution, please let us all know how you get on.
are you able to call and say the methotrexate is giving side effects that you can’t tolerate so you need to go off it. Then hopefully you can try a biologic. I take Cosentyx. I just think it is ridiculous for you to suffer for a year or to be in the position of stopping medication without doctor’s assistance. I hope you can get an appointment.❤️
Thank you
Yes I agree, there are other drugs to take. Tell the doctor's the side effects are not doing you any favours! Take care.
uncontrolled inflammation is more likely to be behind the sweats. Sweating isn’t listed as a side effect of MTX. A troublesome cough can be though. I assume if you were on antibiotics for your chest, you withheld the MTX?. I would contact your rheumatologist to inform them of the cough, and rule out it’s connected to the MTX. I get unbearable head sweats, but I got them prior to starting MTX 6yr ago. I e been told it’s the uncontrolled inflammation that’s causing them, and they are definitely worse when I’m in a flare. Hope you resolve it soon
You are having problems ! Ask to see your rheumatologist…..you don’t need to wait a year & put up with symptoms like that. There are plenty more DMards you can try, & as you appear to have failed on Mtx you are probably eligible for a Biologic drug. …or whatever your rheumy decides. But don’t just put up & shut up.
I know I keep saying this…but if we don’t tell our rheumy team when our drugs are not working they assume we are doing OK.
Unfortunately even when we are feeling rotten with RA we have to be proactive & contact our rheumy team to get help.
Pick up that phone☎️📞☎️
I'd agree with others who say - contact your rheumatologist and tell them the methotrexate is not suitable for you.
Have a look at the treatment pages on the NRAS website so that you can see what they might offer you instead so that you can have a discussion - rather than the 'Here's what we will do next' from the rheumy team. nras.org.uk/resource/drugs-...
thankyou
I think the methotrexate had decreased my sweats a bit, but I still have them. I change clothes several times a day & in the middle of the night. They are very uncomfortable,
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