First time on here but got to the point where I need advice off other people in my situation. I have had arthritis (rheumatoid) for 9yrs I'm now 27yrs old. I take 6 500mg tablets of Sulphazadine every day with 2 celebrex also, this has never been changed throughout the 9yrs.
Usually I get the aches or odd days especially in winter time when I struggle, however 10.5 weeks ago a flare up occurred. Ever since then I have been unable to move my right wrist, I've had to use a wrist splint to just be able to move it. My hips have always been a bit funny but it's now every day I walk with a limp/hobble due to my left hip. My right shoulder continues to play up and now it's moved also to my right elbow and I can't straighten my arm now.
It took me 4 weeks to get to see my consultant at the hospital then I actually saw one of his trainee's. He said I had a choice of going on methotrexate or try a steroid infusion. As I'm 27 I don't really want to go on methotrexate due to stuff I've read about infertility but also the side affects, therefore consultant recommended infusion which he said I'll get you in for next week. 3.5 weeks later I finally got the infusion however it made me feel less pain for 1 day only so now I'm back to square one.
Whilst in the day unit I asked for them to write in my notes I wanted to see my consultant about my wrist as it's getting worse, I've lost a lot of weight on my right forearm and the no movement is worrying me. I hadn't heard anything from the hospital so rang earlier this week and they said you've got an appointment for the 8th March this being 7 weeks from my infusion. I can't cope for another 5/6 weeks of this pain and just feeling like crap for my consultant to turn round and say try this instead for something not to work again.
I've rang the helpline and no one seems bothered or wants to help it's like just live with it. I just wished more people knew the pain & how it makes you feel.
I had 3 weeks off work when this first started but I've had to come back as can't afford to be off any longer but god it's hard work. By the time I get to work I'm exhausted before I even start working.
I know I'm rambling but I just feel like I'm giving up and having to put up with the pain etc. that I'm feeling. Can anyone offer support on trying to make me feel better whether this be medication recommendations or hospital advice.
I'm currently based at Wolverhampton (New Cross) hospital but thinking of moving due to the lack of care I'm receiving.