Kings College London Study into the experiences of patients regarding illness and treatment

NRAS are please to support this research. To take part please read below first to see if you meet the criteria. Note this is NOT an NRAS study so any correspondence should be directly via the researcher Rebecca Orme (email at end of this post)

Subject: Recruiting volunteers to take part in research examining Illness and treatment experiences

Researchers from King’s College London would like to invite you to participate in this study examining patients’ experiences with their illness and treatment. Participants must be at least 18, with a diagnosis of any of the following clinical conditions: cancer, cardiovascular disease, chronic obstructive pulmonary disorder, hypertension, osteoporosis, diabetes, asthma, renal disease, multiple sclerosis and rheumatoid arthritis. Participants are also required to identify a prescribed medication for their respective condition.

If you would like to take part please click the link below which will take you to the online study and provide more information.

You are under no obligation to take part in this research, however if you choose to, participation in this research is voluntary and you may withdraw at any time.

This study has been approved by Psychiatry, Nursing & Midwifery (PNM RESC) ethics committee [Ref: PNM/13/14-120], and contributes to King’s College London's role in conducting research and teaching research methods.

surveymonkey.com/s/2P2QW7T

Many thanks

Becca Orme

[e-mail]

[allanah]

Can you do this for other illnesses too, thinking of my diabetes as my answers would be different for that illnesss to rheumatoid?

[Hidden in reply to allanah]

As they don't take any names, and there isn't actually a log in, I suppose if you clicked on the link a second time, you would be able to fill the questionnaire in for a different condition. But you might need a different email address for them to contact you by. Was diabetes one of the options? I would have liked to fill it in for my Bronchiectasis, but they only lung disease mentioned was COPD.

[allanah in reply to Hidden]

Yes I was gonna fill in my diabetes and insulin as well cos my answers would have been different x

[Hidden]

Yes I am sure you can but best email Becca first just to ask if you would need to have different log in to survey monkey or will it let you complete two questionnaires.

[allanah in reply to Hidden]

Thanksx

[Hidden]

Actually you can't, I just tried and it remembered me and said I had completed the survey.

[Misinformed]

I am interested in the connection between RA and peripheral neuropathy in feet and legs. Any trial studies on this I would be happy to join.

Christine ayres

[50something]

Survey completed!

[abednegomonkey]

This is a weird survey if you have more than one of the illnesses, you have to pick just one medication to answer the questions about!!! I would have completely different answers for the different medicines!!! Anyway - watch out for the headings as they move so that the strongly agree sections are on the left sometimes and then on the right othertimes - and as you move down the questionnaire - you can't see the headings so you cant remember which is which. I have a feeling I may have messed it up a bit!!

It was quite interesting to do though... and you really do need the 20 minutes for it.