For the last ten months I have been on this site praising the drug Abatacept. It allowed me to live a near normal life again. i was even able to do volunteery work for a while. My granddaughter laughed hard at me when I told her to look at me actually 'running' (well sort of like running). i was game for anything. this was 'thee' drug for me and i was so, so very happy. i even went out 'dancing'! I did really!
fast forward to about a week ago.....i was getting wee 'niggles' in places where i haven't had 'niggles' for some time. i ignored it but it was there now all the time and was spreading. i had my usual weekly injection on Thursday lst. i hoped it would cure my niggles. the next day, yesterday, i couldn't get out of bed! i'm right back to where i was 10 months ago. pain everywhere from my jaw to my toes.
i have been through all the bio's i know of, Humira, Enbrel. Tocilimab and now Abatacept. i can't take MTX due to liver reactions so there are other bio's that i can't take.
my question is does anyone know of any other bio's? i had a look on the site here and Abatacept is the last one mentioned. my rheumy told me that even Abatacept was so new that it hadn't completed trial in some places.
i thought i was done with all of this.....that i had found the right drug for me that worked 100%.....i don't want to drift into depression at the thought of nothing now available for me now. i am a fighter and work at keeping the depression at bay all throught the trials i've been through with this disease.....but i have a feeling i'm at the end of the road.....please give me some good news.....