Next week will be 3 yrs since diagnosed I was put onto MXT.. then later on, onto Leflunomide. Then late last year, that was stopped and I was given Enbrel,(after having ultrasound scans= active inflammation) this July review and the RA consult said it was not working as it should, so I was prescribed another drug (cannot recall name, but it was unlicensed. When I read the write up, it turned out you cannot take it if you are allergic to ethromycin (I am), so back to clinic and I was put onto Sulfasaline, low dose increasing over about 6 wks....three weeks in and I was so ill, taking them,so called RA nurse, who told me to stop them. I am now seeing the consult in 3 weeks, but in the meantime, apart from the 3 wks on Sulf, I have only been on MXT, and I am suffering now
Maybe the Enbrel did not do as much as consult wanted, but at least I was not suffering as I am now. I cannot understand why, if I qualified for a biological (the enbrel), was I given 'lesser' tabs when I came off it.
One other thing, my crp bloods (and ast) come back as fairly low, when in fact I am swollen up with inflamation (and of course the docs never see you when you are so bad )
I feel like an experiment. Mxt a cancer drug, the pills I could not have were anti kidney transplant rejection pills, the Sulf. for bowel disease ....... I just want thr right drug for me, without all the effects.