Hello everyone my first post!
Was diagnosed with RA at the end of last year so still trying to get my head around the situation!
It’s so overwhelming going from “normal” to having a “disease” and living with debilitating pain.
As someone who has to question taking a flipping paracetamol I’ve found it really hard to accept that I may be on drugs indefinitely...
At diagnosis when I was given Prednisolone I was so anxious about taking “steroids” that I decided not to - only to find later on they did offer great relief for me.
Similarly with MXT I was freaking out - nausea,hair loss as possible side affects to name a few.
But when you take control you realise MXT is where you start and you have to start somewhere..
So I’ve been on MXT for four weeks with no sign of improvement and plenty of nausea-based side affects - I know it can take months - but in the mean-time my symptoms are debilitating.
My question is how pain relief managed while you are waiting for MXT to kick in? Did you take steroids/injection etc
Prednisolone has been the only thing to offer complete relief for me - since my journey started I’ve used two courses of it - the last course was when I started taking MXT to “bridge” pain relief.
Currently with no pain management my abilities to carry on with “normal life” atm is challenging - so need advise on how to manage this as I can’t continue in such pain as I wait “indefinitely” for the MXT to kick in.