Missing Luce (Wooly): Has anyone on here heard anything... - NRAS

NRAS

36,903 members45,608 posts

Missing Luce (Wooly)

30 Replies

Has anyone on here heard anything from her I wonder? She has officially turned into a little grey statue - kind of Narnian I feel? I'm missing her a great deal.

Luce if you do read this then please at least let us know how you are. Tilda x

30 Replies

That's why I put it on here Scouser - I just want to know that nothing awful has happened to her really. X

Sorry Tilda, I can't help, could she have been displaced when the website was restructured. Hopefully she will be back soon

in reply to

She was in the middle of a thread about weird dreams that she had started - only about ten days ago Mads. I'm just worried something bad has happened to her. I suppose we become quite close to people on here sometimes and then a sudden disappearance like this is quite unnerving? X

Caza profile image
Caza in reply to

Morning Tilda, it is unnerving when people suddenly disappear. John (minka) has been on here in ages, he used to make me smile. I think he stopped before the new format. Hope your fizzing is going x

in reply to Caza

Yes John dropped off earlier but I think its harder staying here without a diagnosis or the RA drugs we are all focusing on perhaps? I think the ants are calming down and its more a mild fizz now but as I ran out of Amitriptyline yesterday its hard to tell. X

in reply to

yes Tilda it's very worrying when someone just drops off the radar. I also feel the same about Beth58. Do you remember her?

in reply to

Yes I do remember her too. I think Luce has bothered me the most because she was right in the middle of a thread about her bad dreams and it just seems so odd? X

wiliby profile image
wiliby in reply to

I remember Beth! she was sooo helpful, she was quite poorly though If I remember right?

in reply to wiliby

Yes, she had lots of problems with her heart etc, but she was always so kind and wrote excellent replies. She hasn't been on for over a year so it's not the change over.

tiger profile image
tiger in reply to

I sent her a message quite a few months ago with no reply. I was concerned because as you say she had heart problems.

wiliby profile image
wiliby in reply to

yep, we have the same person, she is lovely. If I remember correctly she did disappear then returned, hopefully she'll be back again.

dtech profile image
dtech

Andy is another that seems to have disappeared. He wasn't too active on here but when he did his posts were worth reading.

in reply to dtech

Yes I've been missing Andy too. But unlike Luce he seemed to disappear with the reshuffle of this site and I'm hoping it means that he's still doing too well on Enbrel to need us!

francherry profile image
francherry

Just wondering if she's gone on holiday, lots of people I know seem to be away at the moment or about to go somewhere.

in reply to francherry

Thanks Francherry but its the deleted profile that's bothering me not just her silence. X

wiliby profile image
wiliby in reply to

that was strange Tilda, she posted question then she was gone! so she's either deleted it or there's a glitch and she can't get on? I don't think she would have just deleted it though do you? if you know her surname you could PM me and I could see if she's on Facebook, haha stalk her for a bit :) xx

in reply to wiliby

Yes I'm glad you've seen that too - she wrote the question and chatted away and then suddenly her profile vanished right in the middle of people's answers. I was hoping it was a glitch but time is passing and there's been no sign of her. I don't know her surname. I asked NRAS but apparently she wasn't a member so they can't email her to check she's okay either? So mysterious and I'm missing her. X

wiliby profile image
wiliby in reply to

what a mystery! and, your so sweet :) xx

in reply to wiliby

Ha apart from the ants nest currently residing under my skin! I came in here not so long ago looking for you too and back you came so hoping Luce - plus Beth and others we both miss will come back and say hi one day soon. Xx

mattcass profile image
mattcass

Hi Tilda hope you are well, The last I heard from Luce was on the 8th August she sent me a PM she had just finished a letter to Pals about changing Rheumies she did sound a bit down and nothing since, Matt

in reply to mattcass

Thanks Matt. She PMd me about ten days ago. I thought she sounded a bit low too. Her profile has gone now which is why I'm worried. A holiday wouldn't explain a deleted profile.

mattcass profile image
mattcass in reply to

Hi Tilda, I forgot to mention her profile was already deleted when she posted me, is she on facebook or twitter.Matt

in reply to mattcass

I know - I miss that little sunset and her wisdom. I don't know about the rest of social network since I don't have FB or twitter myself.

Someonesmother profile image
Someonesmother

She seems to have gone. I too hope she is OK she was very good and helped me through when I had all but given up hope.

in reply to Someonesmother

She's a real gem - hope she reads this and comes back on.

Someonesmother profile image
Someonesmother in reply to

yes me too. I really liked her words of wisdom and support

Wooley was always warm and welcoming to others, lets hope that it's just a glitch and that she will come back again, but let us know her knew name!

I like to think we would recognise her style too. Yes warm and intelligent. X

in reply to

I think we would. x

Caza profile image
Caza

Thanks for letting me know x

Not what you're looking for?

You may also like...

Missing you all

last week. Im letting you know this just so you are aware of side effects of drugs, you may like...

Am I missing something?

my current fitness for work certificate ends, but I'm feeling so tired and have more inflammation...

Message off the 'Missing Lucy11'

today. She says \\"I'd like to stay a little under the radar at the moment\\". So I think she's...

Missing things (where they turn up)

that one had gone. How she would have laughed if I had found it when she was still here. Another...

RA on so many drugs and I just want a glass of wine ☹️☹️😩 So missing a drink at weekends !!!!

Hydro and steroids - can I please have a glass of wine? Has anyone ? Please advise 😘😘