peregrin3 months ago

I had a reading of +3 protein in my urine. My doctor thought it could be due to medication or "hurt" kidneys. He prescribed a low dosage of Losartan. After a couple of weeks on the drug, my protein went down to +2. We'll see if the trend continues.

Dna4christ in reply to peregrin3 months ago

Hello there. Thank you for answering to my question.

He only prescribed medication for it and nothing else?? Is your creatinine okay?? Your kidney function??

Reply (0)Report

peregrin in reply to Dna4christ3 months ago

My creatinine has been stable at around 1.3. We discussed the possibility of doing a kidney biopsy, but decided to wait to see how I reacted to the Losartan. BTW, the med that may be causing my urine protein is everolimus.

Reply (0)Report

Dna4christ in reply to peregrin3 months ago

thank you. I’ll keep that in mind

Reply (0)Report

Blue-Quilter3 months ago

I consistently have 1-2 grams of protein in my urine at 3 years post-transplant. I think it was closer to 3 before the transplant, but I honestly don't remember. Nothing about my journey has been normal, so my team just looks at the current labs compared to the three to five most recent, to see what the trend is. At 1.5, they consider me "stable" and don't get too concerned. However, when my WBC count went 8.6 to 13.2 and then 14.7, without an obvious illness, they did a little digging to get at the root. Turns out I had ANOTHER asymptomatic UTI, which they treated and the WBC returned to normal. If you're team isn't panicking about it, you don't need to either. But do watch the trend, and if they don't say anything, being it up at your next appointment. Best wishes!

Dna4christ in reply to Blue-Quilter3 months ago

thank you for sharing!

I’ve only had protein in my urine one or two times before in 12 years of transplant. I guess I’m worried since this isn’t normal for me. My creatinine also runs around 1.5-1.6 most of the time. It’s been steady. I’ll keep you updated

Reply (0)Report

Yankcg703 months ago

Alot can have to do with how much fluid your are taking in. With my Transplant, after 33 years, he started me on a very low dose of Losartan to help so there is not as much stress on my transplant. It does fluctuate for me. I tend to drink way more fluid in the summer but then when the winter comes around, i guess it's just natural i back off on the fluid intake because i'm not as hot and dry etc. Other lab tests can tell the Dr. if it's that or there is an issue. Good Luck

Dna4christ in reply to Yankcg703 months ago

That’s me right now! It’s pretty hard to drink consistently especially now. When I went last time, I knew I was pretty dehydrated. I just didn’t drink much water. I kind of think that might be the case for me as well. My other labs looked normal.

Thank you for your reply.

Reply (0)Report

Yankcg703 months ago

Thats great

Blackmidnight3 months ago

I was told the itchy skin might be related to how much phosphorus you have in your system.

Dna4christ in reply to Blackmidnight3 months ago

hello thank you for your response! When I was on dialysis, yes that was one of the reasons. Now my phos has always been normal. I think it’s uric acid. They never check it anymore but it was high for me before. I think that might be causing the itchiness esp when I eat a lot of restaurant food!

Reply (0)Report

Dna4christ2 months ago

here’s a quick update:

My protein creat ratio is elevated around 533mg/g

Doc says it’s high and wants to do a 24hr urine test now. If still elevated, I need to take the blood pressure medicine. My bp is 110/70 sometimes low 60s. Hoping that I don’t have to go down that route.

I’m wondering if there’s anything natural I can do.. like take out all protein from my diet.

LisaSnow in reply to Dna4christ2 months ago

You can't live without protein as it is an essential nutrition. Please work with a dietitian if your doctor recommends a change in diet.

Reply (0)Report

Dna4christ in reply to LisaSnow2 months ago

hi Lisa!! Long time. Yes you’re right. Doctor never suggested a diet change. Im finally getting the Dna testing done! It’ll def tell me something!!

Reply (0)Report

LisaSnow in reply to Dna4christ2 months ago

Also, do you get regular urine TP/CR ratio test done? That is a pretty standard routine test, strange if you haven't had one in five years.

Reply (0)Report

Dna4christ in reply to LisaSnow2 months ago

yes that’s what I was thinking. They had never done it at this clinic!!!! Ofc I didn’t even know about it until I checked my past lab results. I am low key frustrated at the lack of care and system. I really want to change places but .. it’s complicated.

Reply (0)Report

Parkerbarker2 months ago

My protein jumped to .75 one week retested went vack to .25 where it was before and after transplant,then week after jumped to .75 again then back down to .25 and stayed there.Sometimes otger reasons why protein flucuates.Yeah sticks arent accurate

Dna4christ in reply to Parkerbarker2 months ago

I actually got the protein/creat test done and it’s around 526. It’s above normal. I should be around 0-200mg.. doctor wants to do more test. I don’t know what it hasn’t been done for the last 5 years. It was around 60-85 back then.

Reply (0)Report