I just want to talk ..

[Asmot]

I am finally posting excuse my poor English it’s not my native language

I have been diagnosed with CKD by a coincidencewhen I tested my blood and urin for a routine test befor college, the protein in urine was elevated and after several months I had to do my pre surgery checkups and they found my creatinine level is a litte bit high and since then I’ve been diagnosed chronic kidney disease

In 2022 I started my peritoneal Dialysis.

My dad had kidney failure and transplanted a kidney when I was young. He was the one who know everything about my case in details and go to every appointment with me I lost him in 2020 he died suddenly after he went to work one day and since then I am on my own .. my other family members try to help but they are busy with their own issues most of the times

Some times I feel so alone and my life is stopped specially after dialysis, I got diagnosed so young and tried to travel as much as I can before the dialysis, I am single and happy most of the times but sometimes I wish if I was married and have a partner who will support me mentally and emotionally and I love kids and always wanted to have many but I don’t think I will

I usually spent my day trying to read, draw, learning Spanish, and watching Netflix and explor the social media

I still try to see the silver lining in life and live optimistically and waiting for things to be better soon I hope.

[Imaanforever]

Hi Amoy.

Sorry to hear about it. I started my dialysis a year ago and I know how you feel. I have good days and stormy days. I try as much as possible to keep my days busy, I didn’t stop working, I just went from full time to part one (2 days a week) which works for me and all my appointment and Selfcare routine.

You are strong and you can do this. If you had a partner does not mean he/she will support you. It’s possible they will and it’s possibility they will make things worse for you. I have been married for 18years and my husband makes my journey a living hell for me.

Create a routine you can easily follow and include Selfcare and exciting things you like in this routine. Keep yourself occupied with hobbies, reading, creating or anything you enjoy. You can do this and I hope you get a donor soon.

All the best.

[Asmot in reply to Imaanforever]

Imaanforever thanks a lot for your kind words and I agree with everything you said .. I am sorry you experienced a bad marriage and wish you get better days ahead and live a peaceful happy life with a better partner soon stay strong <3

[OperationKidney]

Hi friend,

I am so glad you decided to reach out! I think you will find the people on this site to be very supportive and understanding. We are a variety of ages and stages, and I think I speak for a lot of us when I say you are welcome here!

I myself am only 31, diagnosed at 26 and just celebrated 4 years post transplant this past Monday. It is not wasy being a young person with a chronic illness, so I am so sorry you are also dealing with poor kidney function & dialysis. Peritoneal dialysis is such an amazing technology! I am happy to hear that you have been able to take advantage of it.

I am also sorry to hear about your dad passing away. I can imagine that was hard on you since it sounds like he was a big source of support in your life especially since he had experienced life with kidney disease himself. Sending lots of love and comfort your way.

If you ever need a friend to talk to please don't hesitate to reach out. My inbox is always open.

Tess

[Asmot in reply to OperationKidney]

thanks honey I appreciate your response .. I am happy that you found a donar and wish you more years of health and happiness

Yes dealing with such a thing in youth is very difficult but we are strong and will survive 💪🏽

I will stay in touch dear Tess have a blessed day.

[Beachgirl32]

Good day to you. So sorry to hear about loss of your dad sound like he was your rock.

I started pd dialysis in February of this year I do the cycler at night so I get my day free. Are you doing manual or the cycler ?

Are you still working maybe you can find some support from your coworkers .

Are you religious do you belong to a church or a temple or what religion you may follow . You could reach out to your church family for support but you have to be willing to share your journey if people don’t know what you are going through it hard to support you .

Places like here are great support and we don’t mind you writing any time you feel you need to and by the way I think your English was great I had no problem reading your post.

I am married but a lot older than you my husband can support me verbally but not physically he can’t help me set up anything I do get some support from him but I also get support from my friends and my church family.

[Asmot in reply to Beachgirl32]

Thank you my friend

Yes I do the cycler at night also, and I am not working at the moment.

I am greatful to be among caring and kind harted people <3

[Erifre]

Hi Amoy!, I’m so sorry for your dad’s loss and for all what you’ve been through. Despite your pain and fear, you went for the treatment, that means a lot!, and also means that your life is not done!, you have a lot to live and plenty to enjoy. Dialysis will help you get ready for what comes next, and the choice is yours, be brave, stay strong. In this group you can find always a smile, a tip, comfort and all you need to go through. This group is made out of people scared of what comes next, people hurt for what happened to them or to their loved ones and most importantly, people who have conquered their fears and stay strong. Please stay in touch and let us know when you need help we are all here for you!, Do ‘t stop

[Asmot in reply to Erifre]

thank you for the encouragement I appreciate your kindness