On Monday morning this week I received a call saying I was third on the list to receive a deceased donor kidney. They hadn’t yet harvested the kidney and would need to test it after harvesting it, stc. But the initial data looked very good. A low risk lifestyle, etc.
Tuesday morning I learned I would definitely receive the donor kidney if it was deemed viable and I was testing infection free. Very late Tuesday evening I was rolled into surgery. By 1am We’d morning I was in recovery.
The kidney is already working. My creatinine has lowered from 3.4 to 2.6. Everything is going very well.
I was supposed to see a surgeon Tuesday morning at 9am to do an examination for PD catheter placement. I cancelled that appointment, of course. I’m still somewhat stunned to have a donor kidney but am so thankful.
Jayhawker
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Jayhawker
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Congratulations!!! Thats amazing news. One of my fellow dialysus patients also got a new kidney recently and is doing well. Take care and much love and respect to the donor and their families.
OH, JAYHAWKER! I AM THRILLED FOR YOU!!! CONGRATULATIONS! I am so happy you were able to avoid dialysis and get the new kidney. May you continue to heal and improve. What a wonderful Thanks/giving. There just no more words. Many Blessings.
Wow! Congratulations on your surprise gift! Wishing you well in your recovery - it's a lot to get used to all at once, but your team will guide you through it. Take care!
thanks for asking. First, my new kidney continues to do very well. I’m still learning how to deal with insuline for type II diabetes. I’ve had type II for about 15 years but pre-transplant controlled it consistently with diet and exercise, no meds. Post-transplant is a different situation. The transplant meds have really changed this management for me. We anticipated it would. So I’m now trying to learn how to effectively use insulin, both fast acting and ling acting. It’s getting better but isn’t where I’d like to see it yet. Also, over the past few weeks my white blood cell count has dropped very low. So, they’re dealing with that now.
I’m slightly more than 4 months out post-transplant. My sense is that they’ll begin pulling back some on the Prograf and myformic as I get to 6 months or a little more post transplant. I believe it’s the myformic that has caused my current very low white blood cell count but am not sure. Time will tell.
But, the kidney is working extremely well! That’s an incredible blessing. They’ll get the rest of this figured out. And, I’ll learn how to deal with the insulin.
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Partner of kidney patient looking for support
What does having a NEW KIDNEY feel like? 
