I’m in the hospital healing from a fungal peritonitis infection doctor said only a small percent get this kind . The pd catheter had to come out. The surgeon said it was pretty clean in there there was some pus . But I been on loads of fungal medicine bro help it. So my first surgery was Monday to take that out and then later that day they put in temporary line for hemo.
My first session was yesterday they did two and half hour I was expecting all the worse to throw up to be dizzy to have chills or cramps I was blessed didn’t have any of that .next time three hours .
I will be on Tues thurs and Saturday scheduled I don’t know if I get to pick the time
Anything anyone can tell me about hemo I should know thank you
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Beachgirl32
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If you are going to be going to a center, let them do the worry. You go, sit down and relax. Find an activity that will make the time go by like a good book. I play Spades on my phone and love it. I used to read and do puzzles, but I am hooked on Spades. I actually look forward to my 2 hours to play. The mind set about dialysis makes all the difference. You are used to it doing everything on your own, so it will be easy.
Things to watch out for is them taking off too much fluid. If you get symptomatic, cramps, dizzy, low BP, make sure they adjust. And do not let anyone bully you. They are getting paid to help you.
If you have a catheter, follow exactly what they tell you to do about maintaining it.
Will you be going back to PD? if not, plan on getting a fistula asap. But heal up and take care.
Yeah they did vein mapping yesterday to see if I can have a fistula or a graph they have a hard times with my veins when they put in Iv has to use an ultrasound
Another Spades player!! Nice. I learned to play 40 yrs ago, in the navy. Those boys play for real!!
I gather they're making OP's hemo permanent. If that's the case, you can look forward to a vascular surgery to create an AV fistula. It'll take a few months to "Mature", then, that will be your access point and they'll remove the central line that you're using now. I'm sorry to say, I don't know enough about grafts to comment on them.
Bring something to kill time. I see about 25% of fellow patients read. I listen to SiriusXM and play games on my tablet (Spades, Euchre, etc). Also, consider bringing a blanket. Dialysis causes me to FREEZE. LOL. My arm feels like I left it in the freezer for too long, going numb sometimes, but always cold. Once I'm off of the machine, it starts to feel warmer. I get the feeling I'm going to hate winter.
Thank you yep eventually I have to get it in my arm . My second session was today theybjustbarevdoing it slow they just took a 1000 off I don’t know what they usually take off injustvdobthreecandbhalfbhourbcaysevofvmybweight . I took a book today and played some phase 10!and Skip-Bo both on line cards games. Yes it going to be permanent.
I was getting cold and found that my saline was very cold. They have heaters on the machines. Tell them to turn it up. I have heated dialysate and I warm the saline under a light before hooking it up.
In my case when they pull too much is when I get the very low BP, the sweats and throwing up until they add more fluid. So far no cramps and I thank God for that. Watch what they do and ask about whatever you are unsure of.
I have tiny veins and the fistula never worked...now I have a graft and it works extremely well.
Sooo many hugs going your way, Beachgirl. Hubby was on in-center (daytime) hemo for a while and did fine on it - here and there dialysis led to high blood pressure spikes and some severe cramps but they worked with that. Make sure they hear from you when that happens. My hubby, too, had a temporary catheter then switched to PD. Doing dialysis during the day has some positives...you can enjoy sleeping through the night without machines running. My hubby also scheduled his sessions for M, W, F so we had the weekends to do anything we wanted. (His nephrologist actually referred to it has "holding a part-time job with weekends off".) Oh Beachgirl, you're very close to getting a transplant. I'm crossing all my fingers and toes that this is put behind you sooner than later.
Thank you I pick the Tuesday Thursday Saturday scheduled cause they said it would be easier so I can get the center closer to me because Monday Wednesday Friday one is pretty full at the center by me and it might be easy for me to get my kids to take me on Saturday since you’re off the weekends
I’m just gonna have to figure out what to do with all my Baxter supplies
Baxter sent UPS to us to take the cycler, so that will go quickly. UPS left us a box at the house, we put the cycler in it, and they returned and picked it up. The cyclers are in high demand. It went fast. We also asked our dialysis nurse if she wanted the bags, the cartridges, the tubing etc, and she said no - they were "prescriptions" for my hubby and to dispose of them. (Before we moved to a new house, we were at another very busy dialysis center and that nurse was very happy to take our solutions and extra items - since she was always training new people, etc. She drove to our house and picked up our extras.) Some people give them to veterinarians - they use PD on animals. At the time, we were overwhelmed with hubby's new transplant; I couldn't spare the time and energy lifting and delivering heavy boxes, etc. I simply took the bags outside and drained them down a rocky ravine since it's basically sugar water; I've heard other people water their plants with it. I just knew I didn't want to stand at the sink for hours with aching joints, draining bags. I saved a few things - cleansers, etc., but also disposed of everything else like the tubing. Your best bet is to simply call your center and ask what to do with them. You will definitely get a lot of floor space back.
I know - most people can't give the supplies away. My hubby's nurse told him they are "prescriptions" - just like regular meds - and can't be transferred for that reason. I also think that most everyone on dialysis is on Medicare so no one is in need. I suspect some may worry about contamination too. I really wish they could be returned to the supply house. All the people I've run across wound up draining and trashing everything. I made peace with it - knowing it was largely sugar water.
Hi I do tie, thur, and sat. I was doing it at 5 pm to 9 pm but I talked with the charge nurse and was given an opportunity to start T, th, and Sat at 7am to 11 am I like this hours way better. I’m going back and forth about Home Dialysis Hemo or PD. I too have the catheter and are bullied into the fistula by the doc. But like I tell him I’m a vet of 30 yrs and seen my fair share of combat in foreign countries as well it’s my body so I’ll make the decisions about what I’m going to do with it. Plus I am a very clean person ( man) and I have a great caretaker ( my wife) who assists me with everything. So I’m saying do what makes you happy and don’t let anyone tell you what to do.
I would like to come in at 9 or 10 but they don’t have that available yet and I only been like four times so I’m still the new kid . So far I’m doing better on hemo I actually get sleep at night when I was on pd I had so much drain pain hard to sleep . Every one said my color is back I don’t look as drag out . I think my kidney doctor want me to go back to pd if the surgeon said I can but I not sure I want to plus I never want this infer again it wasn’t just a pure tinnitus that a lot of people get it was fungal peritonitis which only a small percentage of people get. and it can’t even be deadly. So if any chance of me getting that no way back to pd .So did you get the fistula? How long have you been doing hemo? I thought about doing hemo at home but they would like someone at home who can assist you my husband RAIs so bad in his hands he couldn’t assist me and I have very low blood pressure I think it would scarce him the other day it drop super low .88/28 they were on top of it in a heartbeat. But my average bo is like 97/55so it stay low.
my center let me drop the cycler off to them . But I have call so many places vet’s doctor without borders cure no place want the fluid dialysis blades say they have enough for training . I hate to throw it away. The doctor said yesterday that he wanted me to talk to the surgeon who put in the catheter to see how my abdomen look if there a chance I want to go back on pd but I’m scared it was a serious infection it was not just spin -itis it was fungal peritonitis is a rare complication of PD dialysis. They say it could even lead to death so I really don’t want that again. like 3 to 6% of people get it so far I’m doing OK on hemodialysis but my blood pressure did drop really low super low yesterday 77/46 and 88/28 that one scared me I got really lightheaded, but they were over in snap. I am not cramping or anything on hemodialysis so far and I’m not throwing up but I don’t have the fishula or graph in my arm yet. I don’t know if that’s gonna make a difference. my doctor told me he’ll talk to me in two weeks. It will see where we are if I would chance to go back to PD but right now I don’t think so. He also said that usually when you have a fungal infection, you cannot go to PD that’s why he was wanting a surgeon to look into my abdomen.
The fistula should have no bearing on nausea or cramping. The same conditions cause the same reaction whether you're still using your central line, or if they've gone to using your new fistula.
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