Let Me Introduce Myself

Hello, I am 27 years old. I was diagnosed with CKD (Chronic Kidney Disease) on April 2016. My condition eventually got worse a few days after I was diagnosed with CKD so now I have ESRD (End Stage Renal Disease) and I was put on emergency hemodialysis when I was in the hospital in June 2016. While I was first in the hospital I was suppose to be scheduled for a surgery to get my catheter for peritoneal dialysis but when I was admitted my blood pressure was to high, the doctors had to do emergency hemodialysis to stabilize it. The catheter for hemodialysis went into my groin, the most painful thing ever to sit and urinate. Once my blood pressure was stabilize they were able to do the surgery for my peritoneal dialysis. Unfortunately they could not remove the catheter on my groin because it became infected. They had to do some testing to see what the cause of the infection was.

My first few days of doing peritoneal were the most difficult thing ever. I do my peritoneal while I sleep. My first treatment was for 10hours (in the night). The first drain hurt like hell ! After that everything else just hurt. I was up crying during the night when the drains and fills happened. The only time I was at ease was during the dwelling. The pain stopped and my body got use to the draining, filling, and dwelling. The pain happened every now and then but so far I am able to sleep through the night.

I was put on the kidney transplant list in December 2016 and I am currently still waiting for a donor.

7 Replies

  • Hi I have been there but to be honest the pain will go and you will feel much much better.. Good luck with your treatments and wishing you all the best in whatever you are doing

  • Yes, my pain has gone away. But sometimes I get very little pain here and there when doing treatment.

    Thank you @kipchiri !

  • Hope your infection will be gone in time, and smooth dialysing...............

  • My infection is now gone & my treatments are not painful anymore.

    Thank you for your kind words!

  • Awesome testimony. Mine was very similar, just not a catheter in the groin, it was in my chest. For emergency. I got a call that my blood work was so screwed up and that I might not make it to the end of week. I didn't know what was happening or even what dialysis was. It was a scary situation. All this for me started in 2003. Had a transplant in 04 list it in 09 and been doing dialysis since. Waiting on transplant, and doing dialysis. Standing on faith and staying prayerful. U do the same!

  • Thank you for your kind words TamekaS ! I am still trying to be standing on faith on staying prayerful. I hope you the best & that you get your transplant soon.

  • Ur welcome, thank u for ur testimony. We need to try and always be encouraging to each other. So if u ever feel like talking, venting or sharing more of testimony, I'm always here. Take care.