Hey all! I am an in-center hemodialysis patient and am nearing year 9. I'm working on getting a transplant and, for that, i have to get a coronary by-pass. Then, in 6 months, or so, I can get a slightly used kidney. I blog about all things kidney related at DevonTexas.com. I'm also a mentor in the NKF 1-to-1 Connect Program and an advocate in the Kidney Action Committee. I've been a Patient Advisory Committee member since 2010 and officer in the PAC since 2012. I look forward to participating.
Introduction: Hey all! I am an in-center... - Kidney Dialysis
Introduction
Hello Devon,
Welcome to the NKF Kidney Dialysis Community and thank you for all that you do!
wow ,sounds like you have alot on your plate, welcome ,i;m brand new here myself, rick is my name , can i ask are you going to get the by pass done? and do you have a odd blood type is why its been 9 years and no match? i ve been on list for maybe 10 months now, just started in march hemo incenter but june 29th getting pd catheter put in so i can do pd while sleeping at home.
Thanks Rick. I am scheduled for July 7th for the heart surgery. Will take 2 to 6 weeks to recover after that. I guess most of my summer will be in bed. LOL
I don't have a rare blood type. The delay initially (I wanted to have this in 2007) was because I was obese and my BMI was too high. I was told to lose the weight and i decided to get a Lap-Band. However my myopic health insurance provider didn't cover it. So, after three years of dialysis, I went on Medicare that covers bariatric surgery. At that point, I needed some time to prepare for it. Finally, in September 2014, I got my Lap-Band and since then reduced my weight by 115 lbs. So...
Finally last summer, I began the transplant "adventure". In order to get it, I needed a cardiologist sign-off and he found the blocked and narrowed arteries. Once that's done, I will have to await his sign-off and 6 months after that, I should go know the list.
Re: your PD... just be extremely careful about keeping your access clean and sterile in order to avoid peritonitis. You probably already know that but I would be remiss not to say something.
Nice to meet you
Devon
I to am a Mentor for NKF One to One connect I am also an ambassador for them and I enjoy talking to people who is going through different things and having different questions and if I have an answer or an experience I am more than welcome to share with you or anyone else. Good luck
hi DevonTexas !!!! Thanks for all you do in our community and for the NKF !!!!