Wondering how to handle pain when you shouldn’t take NSAIDs

[PepperJack]

Would love to hear how you’re dealing with pain when extra strength acetaminophen/paracetamol just doesn’t cut it. After an unexpected diagnosis of 3b CKD, my nephrologist is telling me to avoid NSAIDs. Unfortunately, several other health conditions find me in daily pain that isn’t managed with other OTC medications. I’m curious how others are dealing with a similar situation - thanks in advance for your input!

[Sapphire187]

My nephrologist told me the same thing about NSAIDS. I’m stage 5 and use Tylenol Arthritis (650 mg acetaminophen per tablet). That usually works for me.

[orangecity41 NKF Ambassador]

I sometimes use Tylenol, but in general does not do much. My pain is due to neuropathy and I use a nerve cream that helps.

[jodaer]

What kind of pain and where is it? Have you tried acupuncture? Massages work well. If you can find one a Bowen therapist is great. There are different kinds of pains and one treatment does not fit all.

[lawntonmedicals]

I'm sorry to hear about your challenges with pain management. Many find relief through alternative therapies like physical therapy, acupuncture, or certain prescription medications that are safe for kidney health. It might also be helpful to explore lifestyle changes or consult a pain specialist for tailored advice.

[nonna70]

I have bone and joint pain because of cancer treatment. I talked to my pharmacist. She suggested a turmeric supplement. I think it helps. If it's placebo, don't tell me!

[drmind]

If possible, consult with a pain management specialist. As someone already said, there are different kinds of pain from various sources. I also believe that there are some prescribed medications that are relatively safe for use by kidney patients. Wishing you luck in finding some relief.

[lowraind]

Arthritis strength tylenol and Tramadol help me in the a.m. when it is very difficult to move.

[Beachgirl32]

sorry for your pain I only take tynenol I have a lot of pain from my polycystic kidneys my cyst push on other organs . I have a giant heating pad and lots of hot bath that help me. My brother did acupuncture he said that really work for him

[barbara55109]

In the US, prescription pain relievers are very difficult to get because of the opioid epidemic. I have a Tylenol 3 script, however it does nothing. It is available OTC in other countries. When I bring it up I'm told to take tylenol. I have HOLES in the bones of my knees in addition to arthritis. Movement hurts, but it hurts less than no moving and then trying to move. I try to remember that. I use ice and heat sometimes to distract me from pain. the Orth Dr. suggest CBD creme, but since I'm on the transplant list I need to check with them first.

[Silkdog]

Has anyone used Salonpas Pain Relieving Patch and did it help to ease the pain? I hard good and bad about them but won't mind trying it.

[OldTownhammock in reply to Silkdog]

Dud nothing for me except roll up

[orangecity41 NKF Ambassador in reply to Silkdog]

I tried it , but my nerve cream works better for my pain due to neuropathy.

[JenwCKD]

I use a heating pad on affected kidney side, CBD-A if really intense pain (over 5 on pain scale), guided imagery and ASMR, and Reiki treatments. All work, but CBD-A increases heart rate and BP at times.

[03Springer]

it’s a difficult topic as we all know. Lifestyle is huge for me, we are what we eat. Depending on the pain, there are various foods that give us a little for what we need. If not already, and depending on the source of your pain, look for anti inflammatory foods or foods that may be contributing. Tylonal works sometimes. Stay positive, I’ve learned that the pain gets me depressed not being able to do anything for it and things that normally and easily would help, I can’t take.for me, that’s sometimes worse than the pain, so make sure and have your support person on hand to talk to.

[OldTownhammock]

CBD gummies help at night