Hello, I'm new.

[Tattypot]

I had a surprise text in March saying that ckd stage 3a was found in 2019 in a blood test I requested for something else. No further action was recorded so I have only heard about it this year, nearly 4 years later! My docs practice has changed hands and my records updated and so I was informed. Anyway I am having to see doc now and understand the implications more as I have had a poorly tum for a month and self testing with reagent strips has found a few abnormal readings. I decided to join this group as I am sure I will need to ask questions from you experienced folk. Doc is doing all sorts of tests and I am awaiting results.

[S_dillow]

i too was diagnosed in 2019.my first primary missed the change in numbers and by the time she found it i was stage 3b.i was referred to a nephrologist,who took a look at my records and to put it mildly was not happy.i have a different nephro,primary and hospital now..youll find help here and a lot of info.

[Tattypot in reply to S_dillow]

Yes, it's disappointing that they didn't tell me as well. I feel for you. I suspect things may be worse for me now too as the first of the tests has come back with a 'speak to doctor'. More tests next week. All that time during covid lockdown we were eating crisps and all the wrong things probably as we had to isolate quickly due to a vulnerable family member and rely on ordered food. I would have been more careful had I known.

[Beachgirl32]

if they have not told you why you have kidney disease I would ask this first is it a hereditary disease it it from diabetes from medication ect watch ibuprofen that can hurt kidney ask what diet is best . Excericise is good but not to over do it water exercise swimming ect are good and walking is good I always use to bring someone with me to my nephrologist appointment they may hear something you didn’t hear and may have differnt questions .

[Tattypot in reply to Beachgirl32]

It possibly is hereditary, my 90 year old sister is suffering from something similar. Also, I did catch something years ago, swimming amongst boats in a bay off Gibralta, that went to my kidneys. Who knows what damage that caused. Thanks for the advice about Ibruprofen and having someone with me. I want to get back to exercising properly and had a walk today.

[Solare123]

Hello Tattypot. I too was diagnosed with 3a CKD in 2019 and only found out about it in 2023! When I questioned it with my GP (I'm in the UK) she said that it was the national health practice to not inform patients as they didn't believe it was a serious enough issue! My EFGR was 60 at the time. I was furious because for the last 4 years, I could have been increasing my exercise regime - I already swim and walk quite a bit - and could have changed my diet to a more plant based one. I'm now doing both those things but I feel that 4 years have been lost. Good luck with it all and welcome to this site which I've found very helpful.

[Tattypot in reply to Solare123]

Oh my goodness, we have had the same experience, i am in UK too. I think Covid probably took everyone's attention away. My records show an efgr score of 59 in 2019 and like you I feel I would have changed my diet during the past 4 years. My next uk blood tests are on Monday. I was tested in France a couple of weeks ago as travelling and had to see a doctor with my bad tum. There is formule Mdrd reading of 62.46 which I am hoping is better but we will see.

[barbara55109]

Same thing happened to me. I didn't even know until I got to stage 4. I had no idea that eGFR wasn't like other blood tests. My Dr. never told me I had CKD.