Has anybody here tried FILSPARI?: It was just... - Kidney Disease

Kidney Disease

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Has anybody here tried FILSPARI?

MPStilwell profile image
9 Replies

It was just approved with special approval from the FDA so if anybody here has tried it, they would have had to be involved in the trial or just had it prescribed in the last month or so... I have IGA which is what it is for. I guess is showing great results in lowering proteinuria which is one of my issues. My doc prescribed it and I am just researching it at this point. He seems to love it but there are risks involving your liver...

ir.travere.com/news-release...

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MPStilwell profile image
MPStilwell
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9 Replies
nonna70 profile image
nonna70

What kind of durg is it? More info, please?

MPStilwell profile image
MPStilwell in reply to nonna70

that’s what I am asking for… more info… all I have is the link I provided.

nonna70 profile image
nonna70

I'm sorry-I didn't see your last sentence. drugs.com has a full description. Hope that helps.

MPStilwell profile image
MPStilwell

I have been taking it for two months and have seen a 40% reduction in protein leakage and I am eating about double the amount of animal protein I was before starting. They have to check my liver every month though…

bumblebee_tuna profile image
bumblebee_tuna

Here is the FDA approval announcement

ir.travere.com/news-release...

The trial for sparsentan was called PROTECT if you want to look it up.

MPStilwell profile image
MPStilwell in reply to bumblebee_tuna

Ya I am taking it now.

jodaer profile image
jodaer

It has many side effects, mostly liver and definitely DO NOT take if pregnant, may cause serious birth defects.

MPStilwell profile image
MPStilwell in reply to jodaer

Ya I saw those. Luckily I am a man so impossible to get prego. I just finished my second month on it and have seen great results. Almost no bubbles in my urine and no effect on my Liver yet... Not loving the monthly test but if it works this well, I will take it!

jodaer profile image
jodaer in reply to MPStilwell

Glad it's working for you.

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