Jardiance: New to this forum, seems like a... - Kidney Disease

Kidney Disease

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Jardiance

buick6 profile image
8 Replies

New to this forum, seems like a good place to learn from others. I have stage 4 kidney disease it's now 27 not good.. for some reason last blood test it was 3b and next blood test it dropped to stage 4 is this normal? Anyone on here taking Jardiance and did it slow down the progression of kidney disease. Was diagnosed with kidney disease April 1, 2024.. so I am really new at this diet and everything that needs to be done.. Any information will be very helpful. The doctors just don't seem to care for some reason.. Thank you

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buick6
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8 Replies
Bassetmommer profile image
BassetmommerNKF Ambassador

Couple questions. What was the GFR levels. Gong to stage 4 is not the end of the world. Yes, diet can help immensely. Also, if you want, can you tell us your age?

buick6 profile image
buick6 in reply to Bassetmommer

I am 81 years old, have arthritis in the hip so it's also hard to walk.. when I first went to the specialist it was 28, I went on her strict diet of zero meat for a month and it went up to 32, I needed to get another blood test for the Jardiance pills, and it went down to 27, I was so pissed off and shocked cause I never cheated on that strict diet.. I see no reason why it should have dropped like that. I am due for another blood test end of July.. The doctor said this was normal? I doubt it..

Bassetmommer profile image
BassetmommerNKF Ambassador in reply to buick6

well, it can be not unusual. There are better drugs out there now to help with CKD decline. At 81, you GFR would normally be lower. It is also normal to have it go up and down. They list it as egfr, means it is an estimate. It is all numbers. NO red meat is a great idea. But do try to include protein with either eggs or chicken. I went plant based for a while and that did help, but then my potassium went way up. I normally eat mostly veggies, no red meat since 1986, so there was no loss for me. Try to see if you can see a dietician, but make sure they are a renal dietician. If you can get some form of movement in it will help. I have very bad Psoriatic arthritis, so I went water walking. Then I joined a water aerobics class and that really help.

Just so you know, there are lots of people who stay with stage 4 for many years. I did, and had little decline for 6 years. I also was at stage 5 for a couple of years before I went on dialysis. Try not to stress. It doesn't help.

TableTennisMama profile image
TableTennisMama in reply to buick6

before you get too upset about the variance in GFR‘s, here my experience. I had my nephrologist and my primary doctor wanting blood tests. So I carried two blood orders into the lab and cautioned them not to duplicate any blood tests because my Medicare would not pay for the duplicate. Well of course they made a mistake and did duplicate the blood test and I came out with two GFRs. One was 37, and the other was 32. This was from the SAME blood draw! My nephrologist said not to worry about that, it’s just normal variance and that’s why they look at the trend over a long period of time. So since then I have not freaked out over these moves of GFR.

Boughhopper profile image
Boughhopper

hello buick6 , welcome and l’m glad you have joined us. You are not alone. You now have others to talk to. Some of us are very experienced and many will know just what you are going through. I have a transplant kidney which is beginning to struggle. My EGFR ( function) is 20. Sometimes l feel unwell, cold, shivery, exhausted but not all the time. I hope to have another year or so before l have to make difficult decisions. But you are a very long way from that. I wish you every good thing. Please ask any questions you like. I was a nurse once upon a time. I don’t know a lot but l certainly understand how you might be feeling. Best wishes Boughhopper.

miraclelady profile image
miraclelady in reply to Boughhopper

Is another transplant an option for you? Or, will you have to choose between what type of dialysis you will go to if/when that time comes? I, too, had a transplant. This October will be 30 years. It is just getting old and scarred now. I'm in stage 4 CKD. However, my anti-rejection drugs caused cancer, so I have been denied another transplant.

ionelcro profile image
ionelcro

Hello, my name is Ionel and I am new to this forum. I have a chronic kidney disease, stable for years with creatinine 1.09 mg/dl. Since March, I have been suspected of having IGA nephropathy, I have not had a biopsy yet. I lose proteins, approximately 500-700 mg/24h, red blood cells 15-15 hpf. In February, serum creatinine 1.09, I was given prestarium (perindopril arginine) and forxiga ((SGLT2) treatment. I took prestarium 0.25 mg daily, forxiga 1 tablet every 2-3 days. In April, creatinine increased to 1.16 mg/dl. From In April, I was given rosucard statins, prestarium 0.25 mg daily, and I take forxiga every 2-3 days, as well as statin. On June 20, the creatinine is 1.16 mg.dl. I saw that the creatinine has increased, but it is maintained within laboratory limits, I started taking forxiga one day, the next day I took rosucard statin, daily prestarium 0.25 mg. On July 1, serum creatinine jumped from 1.16 mg/dl to 1.26 mg/dl at the same laboratory with the same method. determination, jumping from values ​​(0.73-1.18mg/dl). What happened, my kidney function decreased in 2 weeks, or maybe it's because of the drugs, forxiga and statin, that I took forxiga one day, the next day statin and daily prestarium? Has it happened to anyone that the creatinine fluctuates by 10% in just 2 weeks? Is it because of the drugs or has the kidney function deteriorated? I'm afraid to redo the serum creatinine analysis!

ionelcro profile image
ionelcro

I don't know what to say, the creatinine was 1.09 in February 2024, then it increased after I started taking medicine, prestarium and forxiga similar to jardiance (SGLT2) in April the creatinine was 1.16 mg/dl. I took forxiga once every 2-3 days until June 20, then in the last 2 weeks I took forxiga one day, the next day statin, then forxiga and statin again, one day yes and one no, prestarium day by day. In 2 weeks my creatinine jumped from 1.16 mg/dl to 1.26. I don't know if the renal function has deteriorated or the statin, prestarium, forxiga caused a decrease in GFR

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