Lee75glom

[Lee75glom]

My EGFR is now at 8. I have some nausea and depressed mood. I am still striving to not only find a living donor but to ask others to spread the word of my need. Most people feel bad for me or have me in their thoughts. However, if they do not let other people or organizations know, that empathy alone does not help me in the real world. My only family members have offered no support, and I feel hurt about that. I am trying to reach out to them, but I do not know if they will respond.

I have one wonderful person who has been undergoing donor evaluation. I see her as the daughter I never had. I try to add to my Facebook posts, but I get few relevant responses. I wonder if anyone looking for a live donor had any success on Facebook. I have my story on National Kidney Registry. As of today, 128 people reviewed my site and zero have responded.

If I do find a donor who matches, I have to find a team of people to go with me for medical visits after I leave the hospital. I have some people willing to help and hope I can rely on them.

Meanwhile, I try to maintain regular activities at the senior continuing care community I live in, even if I do not feel like it.

Thanks for reading this.

[Porter20]

Are you on Diaylsis?

[Laity]

I’m so sorry. I hope you are able to find a donor and the support you need.

[bbeba103]

Sending you lots of positive vibes 🌹 It can be hard when the people around you don't understand what your dealing with.

Stay blessed

God bless you

[barbara55109]

It is heartbreaking. None of my "family" or "friends" will get tested to donate. I envy those who live in modern nations where everyone is a donor, unless they opt out, vs the US where few people opt in and most organs are wasted and trashed due to a disorganized system. I feel blessed to have even gotten on the 6 year wait list. Many people can't even get on the list and many are uninsured and left to die.

[Badger2024 in reply to barbara55109]

I’m so sorry that you have to put up with such a shitty system in the US. It needs a massive overhaul. I know Obama started to (then Trump dismantled it) but it’s going to take years. I have no idea why people in the US aren’t marching in the streets to improve it. It seems to be so political. Everyone has a right to basic healthcare

[barbara55109 in reply to Badger2024]

Everything in the US is political. People love their FreeDum. Freedom to be poor and die. Billionaires control government and courts.

[Darlenia in reply to barbara55109]

Those countries that designate everyone as a donor unless they opt out are the best!

[Badger2024]

I’m so sorry that you feel so helpless. Try not to give up hope. I take it from your user name that you were probably born in ‘75 so are about 48/49 years old. That should put you higher up the priority list perhaps. You never know when you could get that phone call so make sure it’s never on silent

[Zbiguy]

I got my living donor kidney from the paired exchange program. My donor wasn’t a good match so she entered the program willing to donate to anyone as long as I got a match Kidney. She is my Nephews wife a living Angel. Hope you find a donor soon.

[Miss-guineapig]

I read a story (Britain) about a woman who gave a kidney to a stranger. She wanted to leave something special in the world by allowing another family generation to live on. She was so excited about the process that I felt her and the recipients joy, whom she later met. I am going to find the story and share it where I can. If even one person takes a seed of thought from it.., well seeds grow. Love to you all x