Testing

[Chimama]

I have recently had to have a CT with Contrast and believe that I will have to have more testing done all I know is to drink a lot to flush it out as much as I can. Anyone else have these tests done frequently?

[CuriousCKD]

So far, I have been able to avoid contrast dye with having a certain type of procedure. However, I did have a nephrologist advise me to drink a lot of water before and after a test, if I did have to have a contrast Also, there are some contrasts that can be used that do not cause harm to your kidneys. It depends on which test. Be aggressive and let your concerns be known. It pays. They’re your kidneys, after all. 🤗

[Tulum in reply to CuriousCKD]

Hi I have had CT scans with contrast as I have a cyst on my kidney that needed deeper scrutiny. However my nephrologist felt that further scans with contrast would not be helpful for my kidneys. He gave me a letter to this effect that I now use to remind the urology team before my six monthly scan.

[horsie63]

yes I recently had a CT with contrast to make sure the bleeding into my thoracic cavity had stopped. I felt the benefit outweigh the risk.

After that I had daily X-rays to check the fluid level.

[Beachgirl32]

before dialysis every time my transplant center wanted to do a test with contrast my kidney doc said no he wanted me to save the urine function I had. They didn’t like it but it my body I told them no. Now with dialysis he said that will wash the fluid out and my history with brain aneurysm we have to really check on those. Unfortunately with polycystic kidney a percentage will get brain aneurysm. Yes drink a lot of water but ask why do I have to have contrast with this test . Is there an alternative.

[Blackknight1989]

Last one in 2015…and my OA has put me in a weelchair…lol. But 20+surgeries from ‘99-2014 and now an eGFR hovering around 16-22 I’m done. I’m too close to AKI…lol! Plus it’s off to the Emerald Coast (or as we say in the South ((USA obliviously not Southampton…lol!)) the Redneck Riviera….) most likely by November. After 3 years of being literally stuck inside…long story, it’ll be back to a life for a couple of years! Oh, almost forgot…here is a link to the NKF guidance on contrast dye…or maybe it’s one of their “Ask the Doc” blog questions…regardless should help…just BE YOUR OWN BEST ADVOCATE because while money AND research is finally making some headway versus CKD you still have SPECIALISTS (not GP’s saying that NSAIDS do not hurt those of us with stage 4+ CKD. Well BS how do you think I have lived almost 27 years with stage 4 CKD? Oh and diet doesn’t matter! Isn’t that awesome, hell he thought I was diabetic for 2 years…nice! So no neph or rheumatologist currently…just me and my GP until I get to either Tyndall AFB in the Destin/Santa Rosa area or the Naval surface warfare base…either will have quality docs compared to BFE Arkansas…so as a graduate of THE United States Military Academy, my preference would be the USAF base…Go Army! BEAT NAVY!

[Blackknight1989]

Well I got so wrapped up in me that I forgot the LINK! My bad but my better half says I’m a narcissist…lol! Okay reread some of the NKF and WOW…it scared me a little Soooo how about an Update from the Cleveland Clinic from 2021! LINK:

ccjm.org/content/87/11/683