Stage 3 CKD: New Diagnosis: Hi. I was just... - Kidney Disease

Kidney Disease

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Stage 3 CKD: New Diagnosis

zengirl64 profile image
28 Replies

Hi. I was just diagnosed with stage 3 ckd and am feeling overwhelmed and scared. I'm hoping someone can share advice/experience on what to expect, look out for, and how to cope with this. Thanks in advance.

mb🦋

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zengirl64 profile image
zengirl64
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28 Replies
orangecity41 profile image
orangecity41NKF Ambassador

Welcome. You have come to a good forum for support and education on kidney disease.

I was diagnosed 5 years ago at level 3b CKD. My Doctor put me on a CKD diet based on tests, such as sodium, potassium, phosphorus and protein. The diet has helped me slow down progression of CKD. Attached is a link to National Kidney Foundation explaining eGFR and CKD stages.

Please reach out and keep us informed. Any questions, lease ask.

kidney.org/atoz/content/gfr

zengirl64 profile image
zengirl64 in reply to orangecity41

thank

Pattysckd69 profile image
Pattysckd69 in reply to orangecity41

thank you..I feel better just knowing there are people out there like me. that understand what i am going thru.

orangecity41 profile image
orangecity41NKF Ambassador in reply to Pattysckd69

It is an adjustment but after a while on the diet, it becomes easier. Davita has recipes and diet tracking.

S_dillow profile image
S_dillow

take it easy first thing.work with your doctor and nephro and check out some of the links on the national kidney foundation page for info on diet.feel free to ask questions,its the best way to learn

zengirl64 profile image
zengirl64 in reply to S_dillow

thank

zengirl64 profile image
zengirl64

I keep typing "thank you" but only the "thank" shows up. Does this happen to anyone else?🤔

S_dillow profile image
S_dillow in reply to zengirl64

sometimes.it could be a site issue on your end.but its all good

HisLittleOne profile image
HisLittleOne

Hi There!

Don’t be fearful. I know how frightening and overwhelming that diagnosis can be. I too was diagnosed with CKD stage 3 about three years ago and I almost lost my mind over worry. But after much prayer and research I found some help. First, I put all my faith in the LORD Jesus to heal and direct me to the steps I should take.

I learned that diet is very crucial. I cut out all meat from my diet and just eat a plant-based protein daily. I am very careful not to use excess salt and I drink a lot of water. I also discovered that resveratrol can be very beneficial to the kidneys so I started taking that. I also try to do intermittent fasting 16 hours a day. I try to walk a half hour daily and keep my blood pressure low.

The combination of these have resulted in a very unexpected improvement in my kidney function tests last month. In fact, my eGFR and creatinine have not looked this good in ten years!

So, please don’t get stressed out over it. Just do research, talk with a good nephrologist and pray to the LORD for His healing and guidance. It’s not the end of the story…There always hope!

God bless you! ♥️

zengirl64 profile image
zengirl64 in reply to HisLittleOne

wow, that's awesome. Thanks for the encouragement and advice.

Pattysckd69 profile image
Pattysckd69 in reply to HisLittleOne

thank you so much God is good all the time.

seabreezegirl profile image
seabreezegirl

Look up DeVita top 10 recommended foods to eat Cabbage , Red bell peppers , Berries and cherries, Broccoli, so on ..

** I would add... buy Organic veggies and fruit as often as you can your kidneys and body in general does not need Round- up .

Stay away or limit high Potasium and Phosphorus foods and drinks . Like sodas , potatoes white and sweet , so on...

Watch sugar and salt intake.

Watch / limit protein intake , little red meat , but fish and chicken OK small amount .

Drink well filtered pure water . 💧

Exercise in fresh air if you are able .

Find a free nutrition program theu a hospital Community eduction dept. with teaching for kidney diet .

Be happy and thank God each day for your blessings and the beauty around you .

zengirl64 profile image
zengirl64 in reply to seabreezegirl

thank you very

Pattysckd69 profile image
Pattysckd69 in reply to seabreezegirl

thank you this is very helpful

Ziggydoodah profile image
Ziggydoodah

Just to say you have came to the right place. We have all been there. I was in a very bad place when I was first diagnosed. However you end up just getting on with it. Follow the advice you have been given above. There are some amazing people on this site, who sometimes seem to know more than my medical team. Keep asking questions or just come on here when you are feeling overwhelmed by it all. This site has helped so many people and its because they have experienced it. Its OK to feel the way you do and you will get days when you are down. However you will soon tackle it head on and start taking it in your stride. You are stage 3. You still have time to improve your function. Big hugs. You can do this. You are stronger than you think!!!!

zengirl64 profile image
zengirl64 in reply to Ziggydoodah

i truly appreciate your

Pattysckd69 profile image
Pattysckd69 in reply to zengirl64

thank you I just want to live

Turtlepad513 profile image
Turtlepad513

I was shocked, scared, overwhelmed, and devastated when I was diagnosed. You are not alons. With time, it will get easier. You will still have to think about it daily in terms of what you eat etc. But you will find you can general have a normal life especially in stage 3.

Finding some support whether it be friends, family, faith community, or any other community will be so helpful as well. You could even connect with a therapist.

zengirl64 profile image
zengirl64 in reply to Turtlepad513

It helps to know that you were a well. I know I'm not alone in my reaction but it still is comforting to hear that.

Pattysckd69 profile image
Pattysckd69 in reply to Turtlepad513

when i was first diagnosed i was at stage 4 ckd and was told if not for the hi doses of prednisone i would be on dialysis now i am at stage 3 ..

Johnson82 profile image
Johnson82

Stay strong and know that God is with you. Start a social media page to tell your story and ask for a kidney donor. The more eyes you can get on you story the better. I was blessed with a miracle and got a new kidney from a stranger that I never met before. Miracles happen every day and just keep praying and keep the faith over fear.

zengirl64 profile image
zengirl64 in reply to Johnson82

That is wonderful.

Frankie24 profile image
Frankie24

get on a kidney friendly diet. Watch potassium and phosphorus. Drink plenty of water and exercise. Trust me you don’t want to end up in ESRD and on dialysis. Work hard and hopefully you can keep this from progressing. I wish I had realized how serious my PKD diagnosis was but I was young and felt invincible, sadly not the case. Now I am waiting on a long endless transplant list.

zengirl64 profile image
zengirl64 in reply to Frankie24

Thank you 😊

Beachgirl32 profile image
Beachgirl32

It can be scary. Acceptance of your disease is a greaT start. Talk with your nephrologist ask him or her wHat cause your kidney disease. What steps can they recommend to keep it at stage 3 or improve it as long as you can. I knew my disease was inherited pkd so I knew only so much in my control. I stayed in stage three for over 20 years. I was very active I did aqua Ari three times a week and I enjoyed swimming. Stage four didn’t hit me until my 50s stage five just came recently and I’m 66 . Now I walk a lot . I admitted in stAge three I was a soda drinker I gave that up not good for kidneys . I try to eat a healthy diet best I can .

I know there are medications out there now that are suppose to help with kidney disease I know some people here have talk about being on them so may want to ask your neph about them .

Darlenia profile image
Darlenia in reply to Beachgirl32

Glad you mentioned knowing the underlying reason for the diagnosis. That makes a huge difference in the recommendation of diets, meds, etc.

zengirl64 profile image
zengirl64 in reply to Darlenia

Oh good. 😊

zengirl64 profile image
zengirl64 in reply to Beachgirl32

Thank you for such supportive words.

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