I can well understand your frustration with spilling protein and the ups and downs.
First, has your doctor given you a specific kidney diagnosis; such as IGAN, Membraneous Neuropathy, CKD, and why you are spilling protein into the urine?
Very often when a medication intended to lower or end proteinuria is stopped too soon, before the spilling will return. So what you are telling me is not uncommon.
I would make an appointment with your doctor and discuss this as well as the fact that this medication appears not to be doing as it should, why, and if there are alternative medications for them to try with you.
Are you diabetic? Do you take medication for high blood pressure? Are you taking a statin drug? If so, which one? All factors to be considered.
Unfortunately there is no cure for kidney disease only ways to manage it through diet and medication with the goal to stop progression.
Completely removing protein from your diet is not wise as it will create other issues.
Kidney patients eat a low protein diet with no no red meat, or foods high in sodium. Eggs, chicken and even beans if your potassium is normal are preferred. You could easily make a nice curry with kidney beans in it.
Another discussion to have with your doctor. As each person is different.
In the US, the 24 hour urine catch is considered the gold star marker of kidney function by nephrologists as it is an average of your urine output and kidney function over 24 hours; similar to an A1C for diabetics which measures average glucose over 3 months. To do a spot urine check indicates your function just at that time .
So your doctor is right to ask you to give your samples in that manner.
This is all a process and answers must be found. Please give the doctor a call and meet with him/ her. Take your lab results from the last two tests. Write down questions and don't leave the office unless they have been answered.
Remember that if you are not happy with the response and care from this person, you have the right as the patient to seek a second opinion.
Thanks so much for your very kind words, Skinnyblue. I'm touched. I just hope that whatever I can share, even if it's just support at rough times can help someone in the community.
Please keep in touch or better yet, private chat/ message me at any time. Love to talk to you!
How to check a specific kidney diagnosis; IGAN, Membraneous Neuropathy, CKD,
please inform if any test to do to identify the root cause of protein in urine .
My doctor only starts medicines without any test .
1. Olmysartan 20 Mg Twice in a day ,
2. Amryl 2 Mg 3 times in a day (Glimepiride 2 Mg and Metformin 500 mg )
3. Oxra 10mg (SGLT-2 inhibitor) and
4. Shelcol 500 mg once in a day ( Calcium and Vitamin D Tablet ) .
He said 70 % kidney problem is due to diabetes .
He has test my Anti PLA2R test the value come < 0.6 .
He does not diagnose the root cause and start the treatment based on diabetes . I have no diabetes effect on eyes and heart as Fundus eye test and Heart ECO is normal which is currently rule out diabetes.
Now he is suggesting after 2 months about kidney biopsy .
I have injured in some accident where right kidney is located but that time pain has gone in 2 to 3 days in December 2022 but there was no swelling no blood come from my body .
I have pain in right side of my kidney the back right side pain but he said he will do the kidney biopsy on left kidney .
Is this pain is due to accident ?
Also Is it possible to do the biopsy with right kidney ?
My proteinuria is not stooping since 2 months after taking this medicines .
Can you suggest which test I have to do to find root cause of proteinuria and what is correct medicines for that .
I have mild diabetes HB1AC 8.2 since last 5 years but taking medicines and there is no effect of diabetics on my eyes and heart as tests are normal .
My HB1AC is 6.1 and sugar 117 .
No I am not taking any statin drug as doctor not suggest it please inform if it is required for proteinuria .
Please suggest for test and medicines for proteinuria .
Your present doctor has ordered many tests and prescribed alot of medication for you.
Generally the first line of treatment for proteinuria is blood pressure medications as they also take pressure off kidneys and protect them.
Proteinuria is not uncommon among diabetics or pre- diabetics and he is strongly medicating you for this, but not suggested diet adjustments.
Considering that you had an accident with a kidney issue and are in pain, it's time to look into this further.
Has your doctor ordered any kidney ultra-sound tests, or CAT scans to take a look at the kidneys? Especially if you are in pain.
A biopsy will be a specific way to identify if there is specific kidney disease causing this and how to treat it.
At this point, I would consider getting a second; see a nephrologist, a doctor who specializes in kidney issues. He/ she will order their own set of very specific tests and assess your case.
Look into it and let us know how you are. We are all here to support you!
Yes I have done kidney ultra sound tests and CAT scan both and it shows kidney are in normal position and shape and in size .
1. Can I asked doctor to do the biopsy in right kidney where it have some pain ?
But the doctor deny for that he said he do the biopsy of left kidney as it is on lower pole .
Is right kidney is associated with right side of brain ?
I have done my brain MRI as there was some pain earlier and the report come
“Small Tortus Vascular Loop Of Right Scca Is Seen In Right Parapontinee Cisterm ,Impinging Root Entry Zone Of Right Sided Trigeminal Nerve .Mild Kinking And Lateral Deviation Of Right Trigeeminal Nerve Is Noted .(Grade 2 Neuro-Vascular Confict ) “
2. Please suggest which very specific tests I have to do for this as doctor are not suggesting here .By this I can ask doctor to do that tests .
This is very limited study. About mal absorption of Vitamin B 12. Regardless, patient need to check B12 in blood work. Most times, diabetic patients loose B12 and have low B12 in blood report. Need to take supplement to maintain in mid range.
Agreed. 100% If supplementary B12 is needed, it will be reflected in the labs. My feeling is that if it's low, out of range, let the doctor decide what is best; injection or oral medication and monitor it until the results return to normal.
My brother is a type 2 insulin diabetic who ran into this. His PCP jumped on it and has back to normal.
So far so good. My brother's B12 and D deficiencies were discovered in his routine diabetes check which is every three months. Our PCP monitors him and gave him a prescription for both vitamins and repeated the blood work in six weeks to find them both back to normal.
I do know that B12 shots are prescribed if the levels plummet severely, so I'm glad that this wasn't the case.
So glad that you stay on top of things and are seen every three months, especially if you are diabetic.
Absolutely keep an eye on your A1C, B12, D, albumin, calcium and all of your electrolytes such as sodium, potassium, phosphorus as well as kidney functions and a CBC.
Print them out before your doctor's appointment and be sure to discuss them.
My friend Bett , above, gave you perfect answer. She is very smart, intelligent and very knowledgeable on
Kidney disease.
You need to find a root cause first. No medicine will ever stop or reverse any disease. Medicines only treats symptoms. That makes a person feel better when blood reports show positive results or lower reading of particular test. But never improves root cause.
For protein you can eat
Lima Beans, Vaal, Green Mung, Black Mung, Chana Daal, Mung Daal, Chick Peas ( Chhole ), and Paneer etc. With vegetables.
Yes, Bett is very fond of Indian foods too. She knows a lot more.
Is Ayurvedic treatment is effective in kidney disease ? I have concern with allopathic doctor and they have informed me do not try Ayurvedic medicines as it will damage the kidney and situation gets worst .
I agree totally with Skinnyblue about taking any homeopathic medicines or herbs without consulting with your Ayurvedic Doctor.
Being that the protein spilling is not under control, please consider seeing a traditional doctor; nephrologist or kidney specialist who is trained to diagnose and treat kidney issues. See what they diagnose.
Not all nephrologist treat kidney issues with steroids if that is your concern.
Most importantly as the patient, you have the right to discuss what is the best medical action plan for you going forward.
Let us know what you decide and what the outcome is. We care.
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Losartan 12.5 mg for proteinuria 
Anyone else with Stage 3 but no proteinuria?
