I am so scared and worried,
I have had joint pain in all my body.
My right hand swells, hurts my lower back does even more
I'm always tired, headaches
Seeing a rheumatologist,cardiologist, and now a hemotologist
Took blood test
Persistent wbc
Crp,high absolute neutrophils, high immunoglobulin a
24 hour urine
Abnormal protein/creatinine ratio
Abnormal total protien
High kappa flc in urine and abnormal ration
What can this be I am so scared. Please help!!
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Andre,
We do not diagnose here. I know it is frightening to have issues and no answers. Let the doctors run their tests and figure it out. To be honest, it could be anything but kidney disease is diagnosed with tests over a period of time. Have you had an infection recently or an illness? That can throw the body off. Do you know what your GFR is? I hope you will go to your doctors and make them figure it out and not leave you worrying.
Hi and thank you for responding, yes def stressful and worrisome especially after going from doctor to doctor with no end in sight, I have been dealing with this for unfortunately a little more than a year and I am so tired, 😔 no I havent had any infection or illness lately just gradually feeling my bones and the other symptoms of fatigue and nausea. Thank you I hope so too....
You obviously have symptoms of something. However, we are not allowed to diagnose what that may be. It is scary, I know, I have stage 3 kidney disease and the waiting to know what to do is awful. Be patient, and this will sound dumb but relax. Stress will only make symptoms and conditions worse. Try to eat as healthy as you can in the meantime, exercise gently, and drink water.
Thank you I am definitely trying to do all I can to put goodness in my body to get some relief, I think I just become desperate especially on really bad days having 4 daughters it becomes debilitating at times... thank you for taking the time to respond back I really appreciate it
You are very welcome! I have children too and I know how scary it can be. I was young when I was diagnosed and really basically symptom free. So, it came very much as a surprise to me.
If you dont mind me asking what prompted you to find out you had it? Yes very and at times I feel guilty not having the energy with my kiddos.
On Christmas Day 2016 I became very ill with what I thought was the Flu. It was not my left kidney was in kidney failure after slowly failing for many years. I had very vague symptoms for many years with no explanation for them. Such as muscle pain and weakness, tripping, falls for no reason, irritability to beat the bandwagon and migraines. It was never picked up on that my kidney was failing and my doctor thinks it is something genetic or I was born with. I have no diabetes or HBP.
ok, first thing to do is calm down and take a breath. You are seeing the appropriate doctors and you need to wait and let the doctors work it out.
The joint pain and swelling could be some form of arthritis and a totally separate issue from kidney disease.
You colud also have an infection going on. They will sort it out and your total panic will only make things worse.
Let us know what happens.
Hi,
My rheumatologist suggested I may have psoriatic arthritis or rheumatoid arthritis, so she had me tested for it and the red factor as well everything cam back negative or within normal range so when she saw I had an elevated crp with wbc, and the kappa flc and abornora ratio in urine with my family history she sent me right away to a hemotologist, and now I am waiting for the rest if my results. Thank you for taking a moment to respond to me. I will keep an update once I see the doctor. Thanks!
immunological arthritis can be so difficult to diagnose. I have had joint pain for many years and always tested negative for everything but now my rh factor has shot up. Going back to the rheumatologist soon.
I will ask my doctor about that too, becuase I do hear alot how difficult it is to diagnose so I hope you will get good news and feel better soon!
Hi Andre. This is not a diagnosis. But have your doctors test your Vitamin D as part of your labs. I have stage 3b kidney disease and my Vitamin D was extremely low and i was getting the headaches, fatigue and joint pains. Now i take Vit D and those symptoms got a lot better. Just something to add to all the things you are evaluating. Good luck. I hope the doctors figure it out for you soon so you can on the road to wellness.
I had my vit d test at the beginning of all of this about a year ago, and it was extremely low the doctor prescribed a high dose of vitamin d. But havent had it retaken, recently they did find albumin and various globulin fractions in my 24 hour urine.I am not sure what it means 🤷♀️ but I will def bring it back up to my doctor. Thank you for responding and you well wishes I send you positive vibes in your wellness as well.❤
I must also say from experience and having children, you need to find a doctor that will be more aggressive in testing and follow ups. I insist my doctor sees me twice a year even though I am stable and slowly improving towards stage 2. I have a urine, renal panel, Vit D, and PTH done each time I visit my kidney doctor, plus CBC to make sure my iron levels are high enough.
Andrea your symptoms sound similar to what mine are. See a nephrologist and Get a biopsy!
Really? I have been looking everywhere for Someone in a similar situation. I am wanting to see my hematomogist on the 16th. And i will definetly ask to have a biopsy. May I ask what you have? If you dont mind me asking? Thank you for replying ❣
I sent you a private message
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