kidney disease: Hi everyone. I have recently... - Kidney Disease

Kidney Disease

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kidney disease

VeganNan profile image
28 Replies

Hi everyone. I have recently been diagnosed as having CKD stage 3

it came as a total shock because I don’t seem to fit any of the criteria for developing this.

Im 71 years old and up until now fit and healthy.

The hardest thing I am finding is not knowing the reason why it happened, makes it harder to deal with preventing further damage if you don’t know why it happened in the first place.

i have cut down on salt. Eat a basically Vegan diet with the odd bit of fish, and exercise regularly.

Feel like its a do it yourself job, sifting through the information that might be useful.

any tips on managing this gratefully received

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VeganNan profile image
VeganNan
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28 Replies
S_dillow profile image
S_dillow

the nkf davita site and this forum are a good place to start,but remember there is a lot of bs out there too.ive looked at johns hopkins and mayo clinic research as well.ive been 3b since 2019.

VeganNan profile image
VeganNan in reply to S_dillow

thank you so much for that. I will look those up.

orangecity41 profile image
orangecity41NKF Ambassador

I too was diagnosed at older age (76) at CKD level 3b. My bloodwork showed sodium, potassium, phosphorus and protein out of range. I was put on a CKD diet. On the diet the progression has slowed.

Welcome. You have come to a good forum for support and shared information.

VeganNan profile image
VeganNan in reply to orangecity41

thank you, its so good to listen to fellow sufferers.

orangecity41 profile image
orangecity41NKF Ambassador in reply to VeganNan

Keep us updated on your CKD progress.

Bassetmommer profile image
BassetmommerNKF Ambassador

HI Nan,

Couple of questions...what is you GFR? Stage 3 a is 45 to 59. If your GFR is up towards 60, then some of what is going on may be due to age. Our GFR declines naturally as we age. The thing to look for is a series of lab results that show a decline. If your GFR has been steady over the years and you have a dramatic decrease, then that's concerning. If you have seen a slow decline or none, then, I am not sure there is a main cause. Things to consider are medications you are on such as BP meds, cholesterol meds, and OTC pain meds. All of those can impact your kidneys.

You sound like you are eating a diet similar to a renal diet. That's great. Look at your consumption of caffeine products if any, and processed foods. Lowering salt is good. And make sure you are hydrated. If you have labs done and you are dehydrated, it will impact the results. That's why they do a series of labs.

Give us some more details as to your labs.

VeganNan profile image
VeganNan in reply to Bassetmommer

thanks for replying. My gfr was done again yesterday and is 47. It all started in September and was 34 then , but seems to have levelled off now. I had bloods done yesterday because im having pain over my left kidney

I have reduced salt and very rarely eat processed foods or drink a lot of caffeine

I never drink alcohol

Your reply was very informative thank you so much

userotc profile image
userotc

Re CKD, I guess you do "fit" since you are 71 years old and kidney disease generally worsens with age. But there's plenty of natural things that you can do, as my 67y old mum illustrates after almost doubling her eGFR since a nephrectomy >5y ago. She's CKD3.

Once your left kidney pain has been resolved, you can start to improve your CKD. If, as youve indicated, you find DIY too daunting, you could contact a qualified Nutritional Therapist that specialises in CKD. Keep us posted and good luck.

VeganNan profile image
VeganNan in reply to userotc

thank you so much. Its all a bit daunting at the moment, you have been very helpful.

Turtlepad513 profile image
Turtlepad513

unfortunately, sometimes there is no cause. For instance, primary FSGS has no cause while secondary FSGS can be diabetic related.

You seem like you are already doing the best things for yourself. You got this!

VeganNan profile image
VeganNan in reply to Turtlepad513

thank you. Its all about getting it into perspective.

nonna70 profile image
nonna70

Seems you're well on your way; I'm 71 as well. NSAIDS are not good for kidneys.

VeganNan profile image
VeganNan in reply to nonna70

thank you. I’m learning bit by bit what is good and what isn’t. On the rare occasions I need to take pain killers I take Paracetamol, have been told they are ok

Milli77 profile image
Milli77

Stage 3A maybe considered normal for a 70 year old, if your numbers don't continue to decline. I went to my doctor for a general check up right after the holiday. I had eaten a lot of foods I don't normally eat, such as smoked ham which is known to increase creatinine levels. My GFR was 55. I was told I had stage 3A kidney disease. After being told I had Stage 3 A kidney disease, my blood pressure was taken and it was high 150/90. Then I was told my CKD was due to high blood pressure. So, I was given BP meds. Losartan HCTZ. My GFR went from 55 to 44. I immediately went to a nephrologist with all my blood work and meds. Nephrologist told me "your doctor did this to you". You have acute kidney failure. You didn't have high blood pressure, and the medication caused you blood pressure to go so low it caused "acute kidney failure". It eventually went up to just above normal which is okay for my age. The original blood test was due to eating a high volume of meat right before taking the first test. There are a lot of things to consider, and sometimes doctors don't think out of the box, and say the first thing that comes to mind.

VeganNan profile image
VeganNan in reply to Milli77

I have always been interested in food relating to health, and didn’t realise how much it affects the kidneys until recently. I am 95% plant based eating fish occasionally when the mood takes me, or my body tells me I need it. Our bodies are amazing if we listen to them

RhenDutchess123 profile image
RhenDutchess123

Having Kidney Disease doesnt mean we "did something"...."or that we didn't eat right"..sometimes things just happen..

The stigma attached to this disease can be so insulting.......

VeganNan profile image
VeganNan in reply to RhenDutchess123

I know exactly what you mean. I looked for a reason to begin with and was annoyed because there wasn’t one. Its easier to deal with if there is a reason. Also to me its a big thing and the Doctors were so matter of fact about it. I have come to terms with it now and doing lots of reading . Thank you for your reply

David7 profile image
David7

Greetings, I've had CKD 3 for a few years now. Doctors say it's from taking anti-inflammatory medicine for many years to treat my arthritis.However, I have no symptoms othere than my Creatinine is elevated, which is one way they diagnose CKD.

My nephrologist says to stay away from anti inflammatory meds, drink plenty of water and get checked every few months.

Had a kidney/bladder ultra sound and everything was OK.

So, don't worry too much about the diagnosis, get checked

regularly, and see your doctor if

other symptoms develope.

Happy New Year!

VeganNan profile image
VeganNan in reply to David7

thank you David. That helps to put it in perspective. I have another appointment with the renal consultant in April. I panicked at first

barbara55109 profile image
barbara55109

At 71 this is normal! Google age related CKD.

VeganNan profile image
VeganNan in reply to barbara55109

this was only found when I came back from holiday feeling really ill my GFR was 34% at that time, having been 98% a few months before. Its now back up to between 40-50%. It was the sudden drop that was worrying

barbara55109 profile image
barbara55109 in reply to VeganNan

Lists of things impact egfr. From simple not drinking water the day of the test to "real" ckd. Egfr is a one moment in time test. Ckd can't be diagnosed based on one test. So many people get very upset with typical age related changes or one off results. I'd love a egfr of 50 at age 71. I've been in the low 20s for three years and I'm 60.

VeganNan profile image
VeganNan in reply to barbara55109

i have had several tests now and all seem to be hovering around the 45-50 mark.

Just working on it not getting any lower.

PecanSandie profile image
PecanSandie

My eGFR started dropping at 71. I had a pain in my kidney and finally got tested. Turns out one of my kidneys is smaller than the other (right kidney) and of course no one knows if I was born that way or if something caused it. I do have high blood pressure and had taken Losartan HCTZ for about three years (along with other hypertension medications since 2005.) I did some research and found out that for some people the HCTZ causes problems with kidney function. My doctor then changed my medication and my eGFR started rising a bit. I also take synthetic Vitamin D which is supposed to help my parathyroid which is out of whack because of kidney disease (?). There are a few things that I have learned from this experience: I had to stop denying I had hypertension (I did and do and I have to live with it); sometimes when things get out of whack it really is because of an ageing body (in other words it's not your fault); get yourself a DEXA scan if you haven't yet to make sure that you don't have osteoporosis (kidney problems have an effect on the calcium in your system); and eat as healthy and you can and hydrate when you need to but don't feel bad if it doesn't give you the immediate cure that you are hoping for.

VeganNan profile image
VeganNan in reply to PecanSandie

think you hit the nail on the head with denial bit. I was in denial that I was getting old, My B/P had always been ok until this kidney issue, I am now taking Amlodipine 5mg daily which seems to keep it under control, I check my own B/P regularly because as someone mentioned in an earlier reply low blood pressure can also damage the kidneys. Diet plays such an important part and I eat as healthy as I can

Our bodies are amazing and we take them for granted until things start to go wrong

Thank you

KidneyCoach profile image
KidneyCoachNKF Ambassador

Check out kidneyschool.org

VeganNan profile image
VeganNan in reply to KidneyCoach

thanks I will

1949Gmc1019 profile image
1949Gmc1019

Hello

I am73 and found out recently after blood work that I have Stage 3a. This was also a horrible experience for me. I go to the Kidney Dr and I don’t feel that I get any help. Supposed to eat a Kidney friendly diet, no salt and drink 64 oz of water daily.

I did weigh 129, now I am down to 107, and look like a rack of bones. I need help with what to eat!

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