MGN

[Advidkc]

Hi everyone

I ve diagnosed with Nephrotic syndrome proven ( MGN) , i want to get rid from all medication, my micro albumin is 57 mg, no protein in urine and GFR above 90 , is there is any diet or something i can do rather taking medication

[Skeptix]

I imagine that's a function of what the medication you're on is for. If, for example, you are on medication for BP, then diet can help reduce BP and help reduce or eliminate the need for meds. Certainly it's worth having a look at diet given it's impact on your kidneys.

There's been big changes to the National Kidney Foundations guidelines on treatment of CKD (which I don't think you would classify as). Protein limitation and plant based are two of the things emerging. We very often eat too much protein (which is hard on kidneys) and the writing appears to be on the wall for meat from all sorts of angles, not just kidneys.

There are any other number of kidney friendly interventions but I suppose you need to build up an understanding of the specifics of your disease and what way diet specifics might help you.

But its good address to be on here - there's a fair few folk keen on helping themselves and who are knowledgeable.

[Advidkc in reply to Skeptix]

This disease classified as autoimmune disease, so there are giving me medication to suppress my immune system, i am looking for another way that may help me rather than these medications

[Sophiebun11 in reply to Advidkc]

I have CKD from an autoimmune disease. My nephrologist put me on Prednisone and took me off several other medications and switched a few others. My kidney function improved dramatically because the Prednisone reduced inflammation, plus I was drinking tons of water, a 5 gallon bottle per week.

If you have damaged blood vessels from your autoimmune disease or edema you may need medications.

Suppressing your immune system may be the best way to manage your illness, but a plant based diet can't hurt. The healthier your lifestyle the easier it is on your body. My Nephrologist is considering CellCept in addition to or possibly to replace Prednisone for my CKD.

If you aren't seeing a Nephrologist or a renal dietician I'd suggest starting there. Good luck.

[Advidkc in reply to Sophiebun11]

That’s mean ur nephrologist replace cellcept with pred ?!

[Advidkc in reply to Advidkc]

Because i have puffiness in my eyes I guess due to high dosage of pred , my albumin in blood is normal , i did all other tests are normal , I don’t know my eye leds are puffy,

[Sophiebun11 in reply to Advidkc]

Hi Advidkc, Maybe I didn't say it clearly, I get loopy sometimes. Sorry. I am on Prednisone. My Neph is considering also adding CellCept or putting me on CellCept instead of Prednisone. I've never been on CellCept. I think restarting Prednisone wasn't the best of timing since I live in a high Covid zone. I came down with symptoms of Covid this week, I had it a year ago July. I have an appt. for a Covid test on Mon. I hope it's negative, if so I'll need a chest xray to r/o pneumonia since my cough is horrendous and sounds like the several times I've had pneumonia. At least if it's bacterial and not viral I can take antibiotics and get rid of the infection. I had a cellulitis infection in my shoulder joint 3 months ago and was on Prednisone for that. My immune system is very low right now and so is my gamma globulin level.

Have you been taking CellCept?

[Advidkc in reply to Sophiebun11]

I hope u ll be fine very soon , yes i am on cellcept and pred , but i wat to get rid from pred , i ve puffy eye lid 💔, I guess it is due to pred

[Sophiebun11 in reply to Advidkc]

Puffiness is from sodium, and Prednisone does cause sodium retention. Try consuming less salt, not just table salt but prepared or packaged, canned, jarred foods with high sodium content. I took 60mg of Pred. every other day for 13 years for my asthma and stopped about 15 years ago. I had the moon face, but didn't have edema/puffiness. If you need Prednisone it's a lifesaver, nothing can do what it can do for certain illnesses. Best of luck.

[Advidkc in reply to Sophiebun11]

I didn’t put any sodium in my food , at the beginning yes i put , but now I don’t, still ve puffiness

[Sophiebun11 in reply to Advidkc]

I take Lasix/furosemide and that is probably why I don't have puffy eyes, only edema in my feet/ankles. Are you on a diruetic? You can google "diuretic foods", that way you can try to avoid another medication since you are against them and eat foods that will help remove excess fluids naturally.

[Advidkc in reply to Sophiebun11]

I took lasix but that doesn’t help , i dont ve edema in my feet

[Helloyall]

Low sodium diet . You micro albumin is a little high out if range. A blood pressure medication like lusunopeil even at low dosages protect the little blood vessels in kidney. If you have high blood lipids an triglyceride then any blood or protien .at not show. Wht is the serum creatinine? That's a more telling number. What medication are you on? How long?. This is thought to be autoimmune in origin. Dont eat processed foods

[Helloyall]

It could be that the meds are keeping these level good

[Darlenia in reply to Helloyall]

Exactly. Since this is an autoimmune disorder that damages kidneys, I assume, like you, that the medications are intended to stop or slow it down. Maybe one can go off meds to see if it remains suppressed, but the specialists need to be involved. Autoimmune disorders are nasty. They can do a lot of damage.

[Sophiebun11 in reply to Darlenia]

That's my case too. My Neph. is going to try stopping my Prednisone after 3 months and see if my eGFR drops again. I went from Stage 4 with eGFR of 28, up to eGFR of 50 after one month on Prednisone. I read studies of it doing the same on humans and canines.

[Advidkc in reply to Sophiebun11]

Your results become ok, then they tried to stop pred ?!

[Sophiebun11 in reply to Advidkc]

No, that is not what I said. I don't think I'm making myself clear. It's ok, I trust my Neph. to handle my case.

[RoxanneKidney]

I just read that even at that GFR and ACE will help. And go to plant based diet. Good for you catching things early. Wish I had your doctor.b

[Advidkc in reply to RoxanneKidney]

I didn’t catch things early 💔, at first my protein was 3.5 g it just reached with normal at 57 micro albumin, i wish if i could rid of all these medications, my face totally changed due to this medication 💔

[RoxanneKidney in reply to Advidkc]

Sorry, I didn't read that well. I understand your adversion for meds. I was in denial about my bp for about 4 years, as my protein continued to creep up. I didn't understnad the connection between bp and protein at the time.