Amoxicillin...

[kellyscats1]

I have been following for a while. Time to post. 4 years go my labs indicated egfr in 60s. Sudden decline. My PC not concerned. I told her my dad went on dialysis in his 60's passed away 25 year ago so never new the cause. he was not diabetic. His sis ter lost a kidney young also. Not polycystic for sure. .My doc ordered renal ultrasound and it was fine.

I took matters into my own hands. I am a nurse... we do that..and went to nephrologist. Egfr remained in hi 40s past few years.. i cut out nsaids years ago and am almost vegetarian. Other labs ok..

3 months ago egfr dropped to 36, but 2 weeks prior to labs I had gone to dentist and had several implants and 10 days of amoxicillin 160 mgs q.d.

Only meds I take are Losartin. 25 mgs and lovvastatin 10 mgs every other day. my bp gets low so I do titrate the losartin when i get below 100 /60..

Just waiting for next lab tests. Watch diet and make plans in case things go south.. i seem to have bad kidney genes.. lol.. my aunt on my moms side also died in 30 of kidney disease

Just curious about the amoxicillin

Thanks so much

[Bet117 NKF Ambassador]

Hi kellyscats,

Welcome to our community filled with wonderful, supportive people.

I am so glad that you took matters into your own hands and saw a nephrologist regarding your kidney issue. It is so sad, but today we all have to be two jumps ahead and our own advocates.

As far as the Amoxicillin, Google if it is safe for Kidney patients. Hmm.

Another great source to use is Drugs.com; be it the APP or just google the med and scroll. It will list possible side effects as well as mild, moderate and severe drug interactions.

The AP also has a place to put in your meds and it will tell you if any interact etc.

I am allergic to amoxicillin but despite, I am only given

Azithromycin as it is filtered through the liver and not the kidneys. That's just me and we are all different.

My thoughts; check it out and with your nephrologist.

Please reach back and let me know what is said how you are feeling.

Best,

Bet

[kellyscats1 in reply to Bet117]

Thanks.. Yes being your own advocate is crucial. It is what I teach my patients. Sadly my dismay with the health care profession is backed up by decades of experience. Was going to write a book about mistakes made by both docs and veterinarians. So we must educate ourselves.. learn to disregard to hype and fly by night scammers offering cures.... at a price.. And keep a back up plan handy.lol

Amoxicillin is one of the safer antibiotic but can post problems..Then we must remember all of us have unique genetics. A basic kidney friendly diet and healthy attitude..

Thanks

[Bet117 NKF Ambassador in reply to kellyscats1]

Hi kellyscats,

Totally agree with every point that you made.

I have also had less than stellar experiences with very experienced physicians who were not as written up and not right for me; therefore were dismissed from my health care team, one after 12 years. He stopped listening and provide the top level of care; looking at the whole picture.

All were practicing in metro teaching hospitals. So I understand.

The key point is to have a physician who listens to, communicates with patients in plain language and is willing to share consult with other members of the patient's health care team.

Medication? Agreed that we are all different and what works effectively and is the best choice for one, may not be for another- even within the same biological family.

Hopefully the Amoxicillin will be the best choice and you will be fine.

Please reach out again.

Bet

[Jayhawker]

Thanks for posting your experiences and need to advocate for yourself.

I’ve been quite disheartened with some of the extremely poor medical care I’ve run into over the years. And yes, the mistakes that have resulted from that poor medical care. I’ve had to learn to be a strong self-advocate. In truth, I’m often not comfortable in that role. But I’m the only one in the exam room who will have to live daily with the outcomes of any medical mistakes that occur. So, I’m now both vigilant and a strong self-advocate.

Hearing that persons who work in the medical community are keenly aware of the need for self-advocacy is both somewhat encouraging (I’m doing the right thing to the best of my ability) and appalling (that this is so necessary at this point).

Again, thank you for posting!

Jayhawker

[kellyscats1 in reply to Jayhawker]

Bravo..What I teach my patients is 1. The doctor is not doing you a favor. he is your employee.. He works for you!! 2. If he will not answer your questions.. it is because he probably does not know the answer..3. Ne ver be afraid to question n question again.. If you do not understand the answer have him or her explain it until you do..3 When you have a family member in the hospital sit by their bedside and before every IV is hung check to see it is the right person and have the nurse tell you exactly what it is for and if she does not know ask her to find a nurse who does.

Have them explain alternative treatments..

Do not worry about hurting feelings...it is your life.. you would surely do it for a mechanic or plumber.. Do it for the doctor ....

You are in a partnership with your heathcare team.. and you are the CEO

Good work!!

[KyMom7]

My daughter isn't allowed to take amoxicillin. She was two years post dialysis when a PA put her on Bactrim, which sent her back into failure and on dialysis again. Now, I always run all her meds by her nephrologist.

[kellyscats1 in reply to KyMom7]

I am so very sorry.. Bactrim an Septra and big No No's... The PA shoud have known better.. But we should always check out everything...

[Kidme]

Hi Kellyscats1, I would suggest that if kidney disease runs in your family the nephs should be looking for a genetic kidney disease. I have a rare genetic kidney disease--Uromodulin Kidney Disease (it has a bunch of different names). Initially the only person we knew with CKD was my Mom. She was told it was of unknown origin. After 7 years on dialysis she passed. When I was 60, I was diagnosed with CKD. I was fortunate that my neph was able to diagnose my CKD as being caused by this genetic mutation. This kidney disease causes gout in many people, although I never had it. Ultrasounds do not show anything wrong. I had no symptoms, my creatinine just started dropping but my PCP was paying attention so she referred me to a neph. So far in our family it doesn't seem to start until later in life, in some families it starts in children. At least 6 of us have been diagnosed with it. I am a 7 year transplant recipient.

I take amoxicillin before I go to the dentist. I believe that routine labs can get pretty out of whack when you are taking antibiotics. I've always thought it strange that all kidney disease is kind of lumped together, as if the cause of the kidney disease doesn't matter. Perhaps because it's all treated the same way--and I'm not sure that's for the best. Sometimes it's pretty straightforward where the kidney disease comes from and sometimes it's difficult to find out but I think we all want to know.

Best of luck.