Hi, hope you are all doing well. I’ve just been curious if anyone on this page has/or knows someone who has the kidney disease I have, it’s called cystinosis. I’ve only ever met one other person with it. I’m from Scotland so would be really interested if anyone else on here has the same condition.
Thanks!
What are stages 3a talking about?
Looking for a decent nephrologist
Lowering creatinine numbers: 
Starting to wonder..
What do you tell friends and acquaintances?
