Cystinosis : Hi, hope you are all doing well... - Kidney Disease

Kidney Disease

11,970 members5,032 posts

Cystinosis

Rmatthew profile image
0 Replies

Hi, hope you are all doing well. I’ve just been curious if anyone on this page has/or knows someone who has the kidney disease I have, it’s called cystinosis. I’ve only ever met one other person with it. I’m from Scotland so would be really interested if anyone else on here has the same condition.

Thanks!

Written by
Rmatthew profile image
Rmatthew
To view profiles and participate in discussions please or .

Not what you're looking for?

You may also like...

Gout Flare

Hello all, I wanted to get anyone’s take on something I’m going through. My nephrologist started...

FATIGUE

Has anyone with stage 4 ckd been so fatigued that they could hardly put one foot in front of the...

immune suppression during Covid is scary

Anyone else feeling like Covid is not over for them yet? I’m still working from home, avoiding...

Do supplements help to increase GFR?

Hi everyone. I’m a new member who have recently been diagnosed with stage 3 Chronic Kidney Disease...

Statins

Hello fellow fighters of CKD. I am now stage 3 again (eGFR 57, Creatinine 91) having managed to...