What you need to know to help control or st... - Kidney Disease

Kidney Disease
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What you need to know to help control or stop the progression of CKD

motolas
motolas
26 Replies

Lee HULL, a CKD patient himself, just published an authoritative and comprehensive 500+p book “STOPPING KIDNEY DISEASE”, available on Amazon. In my opinion ( a CKD patient) as well as experts in the field, this book provides the best information available to help control or even stop the progression of this incurable disease.

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Mr_Kidney

Which is it? Does it stop the progression or is CKD an incurable disease?

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orangecity41
orangecity41NKF Ambassador
in reply to Mr_Kidney

I checked the book out on Amazon and it explains the book better.

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Bassetmommer
BassetmommerNKF Ambassador
in reply to Mr_Kidney

I do not understand your question. CKD is incurable. We know that. But you know, as well as many, you can stop the progression and can get control over it. Does not mean you are cured.

I was grateful for his information.

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Mr_Kidney

You can't stop the progression. You can only slow it down. It is incurable. Any book or individual that claims to have a way to stop the progression is selling snake oil and just plain misleading others, perhaps to sell a book?

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orangecity41
orangecity41NKF Ambassador
in reply to Mr_Kidney

I followed a link to the organization. They do give information about CKD, but are also selling a supplement.

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motolas

Please post that link. If it is referring to a product called Albutrix, I can explain what that is.

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orangecity41
orangecity41NKF Ambassador
in reply to motolas

The web site mentioned in information about your book is Kidneyhood.

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KidneyCoach
KidneyCoachNKF Ambassador
in reply to motolas

Its all about buying the supplement Albutrix-S3 and selling a book about a journey through kidney disease with FSGS. I applaud his work. Buying and reading a book and a supplement is great but the proof is in the pudding. Where are the studies which prove it works for everyone who uses it? I was diagnosed with PKD in 1980 and managed to live well for 22 years before needing dialysis. Dialysis was needed only after a dentist refused to give antibiotics after pulling an abcessed tooth. I have little doubt if I'd received those meds I could have gone at least another 5+ years. Each person is different though. Blessings & Peace

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Cathy12156dsrjad

What does dental work have to do with our kidneys. Just interested and confused. Having lots of dental work done and want to be safe. Thank u!!

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KidneyCoach
KidneyCoachNKF Ambassador
in reply to Cathy12156dsrjad

The vessels in the mouth/teeth are often direct lines to the heart. For instance when a person receives anti nausea meds or nitro glycerin for the heart it's given under the tongue. This then goes directly into the blood and distributed to the entire body. Any cavities, abscessed or poor dental health can have adverse impact on one's health. Once a transplant is received the persons immune system is lowered or shut down. If you have a cavity this could easily progress to an abscess and with no immune system to protect you can quickly cause sepsis and death. Therefore good dental health prior and after transplant is crucial to life. Blessings

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orangecity41
orangecity41NKF Ambassador
in reply to Mr_Kidney

It is a question as to whether Chronic Kidney Disease can be completely stopped. Maybe for some it can, but others it can only be slowed down?

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motolas

I would agree. Every case is different and according to stage and how much you want to be in full compliance. It’s hard to do but up to those who wish to try.

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orangecity41
orangecity41NKF Ambassador
in reply to motolas

Yes, other medical conditions could also have effect on CKD

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KidneyCoach
KidneyCoachNKF Ambassador
in reply to motolas

full compliance? I manage my disease well, but being obedient to someone's idea of a dietary, exercise, medication regimen without taking into account the person's individual health concerns, comorbidities can be quite dangerous for some. I've managed my chronic kidney disease for 40 years. I taken it well in hand and done everything needed to slow the progression and live well ON dialysis (17 years). If it works for you that's great but I don't necessarily believe the book or the supplement is a requirement for every person with chronic kidney disease. NKF, AKF, PKD, AAKP and the networks along with HDC and others offer so many resources in education, diet, exercise etc. that are better tailored to individual needs. Blessings

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motolas
motolas
in reply to Mr_Kidney

I understand your skepticism. I suggest a look at https:www.kidney.org/news releases/0314

This is a Dec 13, 2005 from the National Kidney Foundation. NOT SNAKE OIL.

Mr Hull’s book should be read by all with CKD. Certainly incorporates all this info but provides, in my opinion everything you may want to know about kidney function as a CKD patient and what is described as methods to halt progression. Much about nutrients, diets, etc.

Those of us with CKD should keep an open mind. Evaluate all info.

Mr Hull has been writing and posting all the chapters in his book over the past 2 years and now published the entire info on Amazon. To keep cost down it is $16+ and worth every penny.

I am not involved with Mr Hull in any way other than one of many followers who appreciate his knowledge. All chapters with multiple references that can be researched.

2 likes
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orangecity41
orangecity41NKF Ambassador
in reply to motolas

Thank you for the information and clarification. I will look at the news release on Kidney.org

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orangecity41
orangecity41NKF Ambassador
in reply to motolas

I tried the link but could not find the article.

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motolas

I will check.

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motolas
motolas
in reply to motolas

To all I hope this is correct address very long I could not copy and past.

Https:/www.kidney.org/news/newsroom/newsreleases/0314

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orangecity41
orangecity41NKF Ambassador
in reply to motolas

Thanks for the link. It worked

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motolas

I’m interested in your opinion

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KidneyCoach
KidneyCoachNKF Ambassador
in reply to motolas

This link is to information from NKF, not from Mr. Hull's book. CKD progression can be slowed down for many but not all and since there are MANY causes of CKD it is near impossible to determine efficacy of one treatment for each person. Lupus, diabetes, hypertension, FSGS, Alports, PKD plus about 10 other conditions causing CKD. I saw nothing in the link at NKF which referenced the book. Thank you & Blessings

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motolas
motolas
in reply to KidneyCoach

The link from NKF was from December 13, 2005, thus not be from Hull's book.

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KidneyCoach
KidneyCoachNKF Ambassador
in reply to motolas

oh I see I felt you were referencing his book was from kidney.org NKF. Of course it isn't. Anyone who is capable of self-managing any type of illness for 2 decades or more had so much experience to share. I've had CKD for 40 years. Sharing is awesome. Blessings

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motolas
motolas
in reply to KidneyCoach

Thanks for clarification. Is you comment complete?

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sharonlyn

i just recently joined a facebook group...natural kidney journey...everyone who has ckd needs to join this group...i have been eating the way that is outlined in this group since the beginning of march...i have lost a considerable amount of weight...i have gotten off my blood pressure meds...losartain and hydradraline...and a diueritic lasix...i have been working on getting rid of my diabetic med from 2 times aday to 1/2 a day and sometimes not even that...i was a stage 4 ckd at 26 now i am stage ckd 3b at 41...i have gained 15 points...it is similiar to vegan but you cut out sugar...oil...salt...potatoes...tomatoes...no processed food at all...mainly a plant based diet... water and herbal teas are fine...low potassium...low phoshorus...i feel really good...the people who started this group were able to get her husband off of dialysis...and he has been off of dialysis for 14 months...there are a couple of people onsite who have accomplished that...others are raising their gfr's dramatically...all with diet...it is a great group and i am so thankful that i found them...i mean 15 points is terrific for just a month of dedication...i am working to get to stage 2 or better...

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