I'm female, 33, no high blood pressure, no diabetes, just randomly lost 25 lbs since December, so when I was told by my headache doctor through some bloodwork that was ordered last week that I had stage 2 CKD (70) I became super concerned. I could understand the slight elevation with the TSH test since I had lost so much weight and hair loss, but looking back through some blood work in September that showed the beginning of the CKD at 88, right at the cusp I know but to drop 18 points in 8 months is this normal!!!??? I have a doctor's appointment coming up with my GP on the July 3rd and she actually scheduled a blood draw prior to the appointment to do a recheck on the CKD, TSH, and of course Cholesterol (haven't had that done since 2012) but I just don't what to expect after this appointment. Any advice on what to expect from this appointment and what to expect after this, or where to go after this?
Newly diagnosed with Stage 2 CKD don't know... - Kidney Disease
Newly diagnosed with Stage 2 CKD don't know what to Expect from here!!
Dr. Will review the labs and communicate with you about them.
Don’t expect, be proactive, educate yourself on diet, there’s a lot of information on this site. Also DaVita
Website has training videos. I’m at 24 and just found out. You can make it better. Don’t despair. Your young and heal faster. To me comparing my labs yours look good!!😊❤️
Hi and welcome to the community.
You are lucky in that you have found out early about CKD. Since you don't have the two leading causes of CKD, HBP, and Diabetes, there should be a thorough work-up on your renal system. Once you get the information from your PCP and if you are still where you are ask for a referral to see a Nephrologist. A kidney specialist will be more knowledgeable about CKD and it's roots. In the meantime, use the davita.com website and register for a free, 90-minute Kidney Smart class in your area. You'll receive a lot of information about CKD, how to slow the progression and should dialysis ever be necessary, the various modalities for that.
Don't worry too much. You are actually in a good place by finding out soon and it sounds as if your PCP is taking active steps to get to the bottom of the cause. You didn't mention any other health issues have or medications you may be taking, including over the counter ones and supplements. One other thing, you mentioned having headaches. Do not take any NSAID's like Ibuprofen, Advil or Aspirin. Use Tylenol if you must and talk to your doctor about the NSAID's if you are taking them. They are not good for your kidneys.
Come back here when you need some suggestions or just to talk. There are a lot of helpful folks here and can share their ideas and get you over the rough patches.
Thanks for the advice Mr_Kidney!!
Much Appreciated. I used to take a lot of NSAIDS a long time ago for Migraines but have been managing with Topomax, Triptan's, and Aimovig. I also suffer from depression so I take Zoloft and Xanax for anxiety, other than that I stay away from NSAID's and even Tylenol unless I really need it. Thanks again for the advice, I think we have a DaVita facility here in town, I'll check it out.
Let me offer one more website for you at this time. I use drugs.com to check on each medication before I fill a prescription. I look for any possible interaction with my kidneys and if I see an issue I contact the prescribing physician before I fill it. This is for any medication, especially antibiotics. Good luck.
Dr. Kidney always provides great information. I agree on being proactive. The only person who can help you the most is you. Educate yourself with all the information available. The National Kidney Foundation, AAKP or American Association for Kidney Patients are wonderfully informative and can be very forthcoming and helpful. I would add that your number looks okay. Most who start dialysis don't do so until the numbers are at or below 10. Ask to see a nephrologist. He may be able to pinpoint cause and slow or stop progression of CKD. Be sure to ask all the questions you may have. Write them down if needed. We are also here. You are not alone. Blessings
I would also suggest that you start making a list of questions you would like to ask your doctor when you go. I still do that, because when I see him I tend to forget otherwise. And yes, you do have to be proactive! Educate yourself as much as possible before your appt. This may bring a bunch of other questions to mind to ask. Remember too, be your own advocate. This is your body and your health and you have a right to know what is happening to your kidneys. Make sure you don't leave your appt without having the answers to your questions.
Let us know how you are doing after your appt.
Thanks so much for the advice. I'll definitely start my list of questions now. I have my bloodwork scheduled that Friday before my appointment so I'll have an idea of whether the GFR is going down or staying the same or maybe going up 
prior seeing the doctor so I can go over my labs an to whether I need to see a nephrologist or not. I was just concerned about the 18 point drop in 8 months, I didn't know if that was normal or not... obviously not... but since I found out I have stage 2, for someone in Stage 3 or Stage 4 how quick where the GFR levels dropping from stage to stage or is it pretty slow depending on how proactive the person is?
Remember too, that eGFR is but an estimate, based on age, sex, etc. of your kidneys' filtration rate. What is your creatinine, BUN and how about your urine for protein, albumin, etc.? Doctor can also come up with a number based on blood and urine creatinine. GFR alone does not mean you have CKD. Takes time and multiple blood and urine tests to determine kidney disease.
Stay hydrated before your next blood draw. Don't exercise a lot the day before. Stress on your body as well as dehydration can be reasons your GFR dropped also. You want your next blood tests to be true and not influenced from other things that you can control.
Good luck!
Another website that I use that you may feel helps you is labtestsonline.org
This site will explain all of your blood and urine labs and give a general idea of what is in the normal range and you can modify or get really specific questions ready for your doctor(s). Hope this helps.
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