So years and years ago when I was in my mid teens, I was told I had a kidney that was to small. I couldn't get to the hospital they wanted me to go to for a biopsy so they said "we will continue to monitor"
Well that stopped after 1 year.
I have been in and out of doctors for about 15 years with migraines as well.
I will get blood tests and do urine tests and get told there is protein in my urine and that its protoneuria but that's where that ended.
im now 33 and I recently had one of the worse bouts of migraines I have ever had and end up off work for a week, doctors check my bp and its way to high (sorry I forget the levels it was something like 180 over 160)
I was then given blood pressure tablets and some anti depressant for the head ache. I suddenly started having chest pain after 2 days, so I go back and they do an ECG I think at the GP surgery and they said the muscle around my heart is hard (or something like that) which shows the BP issue has been there for years.
They then send me to a day unit at hospital that day, they do my BP which is obviously still really high.
A lot of back and forth over the last 2 months getting told stuff i dont really understand, that I have blood and protein in my urine and indicators in blood tests show that there is something wrong with my kidneys, finally have a ultra sound last week and turns out both kidneys are too small.
I don't have another specialist appointment till the 19th after seeing him for the first time a couple of weeks ago but all he did was make me have more blood tests and told me to come back after the ultrasound, didn't explain anything that has already been going on!I am really worried as I don't know what to do as my GP has been pretty clueless with the whole thing.
A lot of the stuff ive suffered with over the years can be traced to CKD (always tired, headaches, my shins will swell up, I get random itching for no reason, up and down appetite, going for a wee 2 - 3 times a night and other things)
Sorry if this made no sense.