Kidney Disease

What to do.

Since I found out my 2nd kidney transplant is about half damaged from the anti-rejection drug I was taking, going back on dialysis & being rejected for a 3rd kidney transplant I have lost all ambition. I don't have a car, I can't walk long distances so my sister pushes me in a wheelchair & this past January I lost my strength that kept me going, Sophie my cat. I'm 56 yrs old & dialysis is kicking my butt plus I am registered with another hospital to see if they will take me & put me on the transplant list. I really don't know what I want to do. Half of me says stop dialysis and let nature take its course and the other half says you are strong and a fighter and you can do this. I cry all the time. I watch funny videos on youtube just to laugh every so often. I wish someone could make the decision for me. I try real hard to stay positive, but it's not easy. I never thought I would still be living at this age when I was a kid with CKD. Thanks for reading & letting me vent.

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I am so sorry and sad for you. (((((Hug)))

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Is that Sophie in your picture? I am cat crazy lady, currently have four. One is very old and two youngest I took in two years ago when they were only three weeks old. My first experience with bottle feeding and litter training. One still thinks I am mom and sucks my ear. Debbie

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Yes that is Sophie. It's the only pic of both of us & it was taken New Years Eve 2014. Got her as a kitten & put up with me for 17 1/2 years. She was my baby. She kept me going. Thank you for asking.

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I am so sorry that you have had to go through so much distress.

Keep the fight in your heart and soul!

Behind you!

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Thank you.

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I get SSD & I cannot leave the U.S. because of my compromised immune system & I don't have the money. But thank you.

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Thank you for your suggestion

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Thinking about you. Hoping tomorrow brings a brighter day.

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Thank you.

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Praying for you! Have you seen the Project Kidney FB page. They are working on an artificial implantable kidney! They are expected to start their clinical trials in late 2017/2018! Enrollment is currently ongoing, please take a look.

Have you ever done hip bath. A naturopath recently shared this with us. If nothing else it is relaxing!

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Can you give me the recipe? It was hard to understand him on the video. I got about half of it. I am not sure I got the other part.

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Sure this is the recipe he gives. But please make sure you do not have any allergies towards any of the ingredients although these are all natural ingredients:

Take 3 okras cut the top and the bottom tip of each

Then cut each into three pieces

So in all you have nine pieces

Take a bowl of water and put the cut okra in that.

To this add 2teaspoon (tsp)of coriander powder, 2tsp of cumin powder, 1 tsp of salt and 2 tsp of Punarnava powder

Keep this mixture soaked for three hours and then partially fill the tub/ or hip bath with luke warm water and mix the mixture in it and soak in this hip bath mixture for half an hour.

You can get coriander and cumin powder in any Indian store or even Trader Joe’s or Whole Foods and the punarnava powder from the Banyan Botanicals- an online Ayurveda store.

Hope this helps. Let me know if you have any questions.

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Also do follow the usual precautions of checking the water temperature and with this input listen to his tape again to check for all the other procedural tips as I wrote from memory- best wishes

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THank you for the information. I just could not get all the ingredients or know where to even get them. I will try this.

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Hi SN23. Yes I have been on the Project Kidney FB page. I think the artificial kidney is great but I don't see myself getting picked. I've had 2 kidney transplants and I might not be the person they are looking for. Working on trying to get on the kidney transplant list.

What is a hip bath? Thank you for the reply. Prayers to you.

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The first recording explains the hip bath to be done every day or every other day

(English version starts at minute: 4:29). My son who has IGAN stage 3 recently did this and felt and I quote him ‘relaxed and energetic’ and saw some lowring of blood pressure too. That could be because of overall relaxation. Since it does not involve taking any medicines he sees no harm in continuing with this. The video of course also claims improvement in kidney function. I am not sure of that. Will know better next month when he goes for his labs. My very best wishes.

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Thank you. And I would be interested to know if it helped his kidney function. Take care

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Hi, how frustrating to you. Yes the anti rejection meds are so harsh. My sons nephrologist took him off one of his so he would grow in height and he's had problem with rejection ever since. Now on ivig treatments. I see his struggles everyday but he keeps fighting as you should too. Have faith that it will get better and like I tell my son you aren't alone there's a lot of people out there fighting the fight. I hope it starts turning around for you, 56 yrs old is young. Take care you are not alone.

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