Well I am one of those made billions of people are like they’re out there like us Who have neuropathy and lots of other autoimmune diseases that there’s no cures for but you have to make every day count as tomorrow is never promised and know that the the burning pain the cramping the vision problems the muscle problems he atrophy him I tried Cymbalta before there was somebody who posted about Cymbalta it did work for me but eventually my body became immune to it and it stopped working and that’s a lot of the problem is I find that I am facing on my personal journey and I’m sure many billions of others are two is they put you on Amanda works for so long and then your body becomes immune and then you’re at square one again and you have to get more meds another new pill rather a new medicine Help just a little bit or a lot with the pain.
I hope that I’ve been some help I’m just a little inspirational words I am God is with you God is watching over you he’s we’re all praying bro for everybody on here I believe in group prayer you don’t have to know each other to pray for the same thing and God‘s eyes and gods watching over us I know sometimes we may question why he why we’re going through this and some people might think why is God chosen this for me I don’t think God chose it for us I think this is something that happens and maybe God in his way he’s got his so has so much to do that you can’t really explain it it happens it happens you just got a learn to live with it and not try to answer why because when I first got diagnosed to one of my many autoimmune diseases I was in denial because I was so overwhelmed and bombarded with just this one disease and I have all these others that I became so overwhelmed that I just broke down and cried. For all of you out there even if you just got diagnosed are you you you like me and you’ve had a long time or whatever the case just remember always try to keep your head above water stay away from negative people always keep around positive people if you believe in God or whatever your higher power is use that faith keep the faith keep the hope try to keep yourself from the darkness as the Lord to give you the lights when you feel you’re in the darkness or depressed he will Give you the lights and he will guide you through the darkness and scared feelings and all that overwhelm you on your journeys and he will watch over you and take care of you even though sometimes we feel like he’s not there but he is there he’s all around us remember that and remember that God loves all of us all of you everybody and we’re all equals and we’re all wonderful people here and all of you on here are wonderful people and I can’t tell you how much I appreciate all the feedback that I’ve been given to my questions and I want you to know that I am here to answer anybody else’s questions if I can answer them I will give a little Give you the lights and he will guide you through the darkness and scared feelings and all that overwhelm you on your journeys and he will watch over you and take care of you even though sometimes we feel like he’s not there but he is there he’s all around us remember that and remember that God loves all of us all of you everybody and we’re all equals and we’re all wonderful people here and all of you on here are wonderful people and I can’t tell you how much I appreciate all the feedback that I’ve been given to my questions and I want you to know that I am here to help anybody else’s
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I know this is not the best answer for you but I have done a lot of research on Neuropathic pain since I have chronic pain in one of my legs following a DVT. I also suffer from diabetes and I do not always keep my sugars in check. I still eat foods I'm not supposed to eat, so getting neuropathy is a strong possibility for me in the future. I have Hughes Syndrome which is also an autoimmune disease that can cause problems with circulation. I read that a man with severe neuropathy obtains three days worth of significant pain relief from a few puffs off of a marijuana cigarette. Now, this is also no real proof, but I had a few puffs off a marijuana cigarette a few months back after I completely detoxed from prescription pain medication and I was able to perform my part time jobs without too much pain for about 4 weeks straight before I had to go back onto pain meds. The reason why I do not continue to use marijuana is because I do not tolerate it well at all. No matter how little I smoke (even one small puff) leaves me completely incapacitated for over 24 hours straight and then another 24-48 hours of hangover symptoms.
Not everyone can smoke the herb. I will revisit the herb though if I ever develop neuropathy. Cymbalta and Gabapentin can be ever worst to detox from than heroin and I don't want to deal with that. Any how, even if it is not completely legal to smoke in the UK, I would at least try it once. It's worth a shot. If it can provide relief, then it is an answer to prayers. You can do some research online. Nerve pain is so complex. I have also heard that Methadone is good for nerve pain, but it is a horrible drug to become dependent on. I don't know what my leg pain is, nerve or what, but it has to do with narrowed veins and scar tissue from chronic blood clots. I use Norco on the bad days, and to get through my part time job. It does not really take the pain away, it just gets me buzzed and distracts me from the pain and that does lower the effects the pain has on me, but the pain never really goes away.
The only time for me that my pain went away completely was when they gave me 6 mgs of Diladid after gallbladder removal. It barely worked for the pain from air being trapped in my chest from laparoscopic surgery, but the leg pain would completely disappear for hours at a time. Kind of like I had a new leg. I know if I take 30 mgs of Norco at ones, I can get no pain for maybe 3 hours, but I only did that once to see what would happen. I like to keep dependence at bay and go days in between use. I don't want any dependence. I hope you feel better and look into the MJ option. Some also have good luck with CBD, but I did not have any luck with that personally.
Pain is scary. My leg pain can go from almost a zero at times all the way to a 5. Circulation type of pain causes waxing and waning symptoms. Constant pain for me, but the levels bounce around a lot. Sometimes there are lightening zaps even higher. I never know what will set it off. It took me almost 7 years before I was able to get down on the floor onto my hands and knees and be able to get back up without help. I still cannot climb stairs. I can, very slowly, but only if I squat down so low or pull up on the stair rails with my arms. Most of the time, to prevent pain, because climbing the stairs normally brings higher pain levels, I do all the climbing with my left leg only. I used to only be able to stand for up to an hour a day and I was on 60-70 mgs of Norco a day. Now with fighting and a part time job, I can stand up to 4 hours a day (with meds) but I pay for it on my days off and at night after work. But, still much better than when I could no longer walk due to clots and had to be carried into the ER. I also had to be wheeled out of the ER because I could not walk through the hospital. I'm kind of like Dr. House in a way. I really feel for you. I do not even have severe pain and it already ruins my life in many ways. I used to be a long haul driver and all of my will to go out there and drive has just been completely zapped from me. Even a level 2-3 pain that never stops can drive a person mad. I hope you find some relief. I will keep you in my prayers.
I too have Neuropathy ( trigeminal peripheral other cant remember due to brain fog). I take Gabapentin 2400mg daily and it keeps it tolerable.
Started out as electrical shocks that progressed to constant with burning so bad I prayed for death to end my agony.
I am sooo sorry sweetie that you’re suffering so badly.
I wish I could help relieve your pain.
I know you’re very down at the moment and send you my gentle loving hugs.
I’m here for you sweetie.
My hubby is recovering from his 3rd heart surgery and had a difficult time with the surgical site. He’s been in rehab for a couple of weeks now and still is very tired. The stress of it all had taken its toll on me so I don’t post/reply much due to it and my thumb/wrist joint destruction from OA hEDS related.
I miss you my friend. I hope you can find some help to feel better soon.
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