Hi everyone how are you doing today my prayers are all with you and I had mine are RNs come over today and they wrapped my legs in Coban wrap And it will they will be changed into weeks we wrapped up to my knees skin take some getting used to but it’s supposed to help with my blood flow because I have a demon and lymphedema so bad. I am optimistic that this will help the blood flow in my legs. Unfortunately my left leg has damage blood vessels and there’s nothing that can be done no cure only this treatment I’m getting. I hope that people out there will look at their healthcare in their country your community and check the resources if you’re low income there is resources available I know one thing out of all of the things I have wrong with me the doctors have said swimming is a very good thing for all of us for every auto immune disease I have that has no care they have said swimming is good and I love swimming but I haven’t been able to go because I had an infection in my leg and it needed to be treated and now it is and it’s healed and now they’re trying to fix my legs as best as they can and get rid of as much fluid as they can. Still controlling my blood sugars pretty good keeping them within range knowing that if I’m going to have something sweet that I take a quick acting shot before or after rate after helps dramatically. I woke up this morning still with a wicked cold and my hip is really bothering me but my Toradol helps relieve the pain and has almost totally relieve me of the kidney pain as there was so much swelling and getting rid of the kidney infection helped as I was on antibiotics for a month straight. But really the best thing I did for myself is I got the home care and I talk to whoever I could in the healthcare area I asked questions even if I thought they were dumb is no question is stupid. I continuously wrote down notes so I would not forget when I went to the doctor to acknowledge these medical issues as When the doctors are busy a lot of times medical issues are not addressed and forgotten about and this can allow it to get out of here and to the point of no return. If your doctor is not listening to you and refuses to help you or attempt to help you I just brushed you off another doctors you have a right to call your medical board in your area if you feel that you are not being treated properly as a patient and receiving quality medical care so that you can have a quality-of-life. Keep a journal of what you eat what foods trigger inflammation which is a big thing in all of autoimmune diseases cause there’s all ways inflammation. When you see specialists if you feel they’re not listening to you again you can call and talk to somebody about these issues as after all it’s your body be your own advocate as hard as it may be because were sick you have to take the action as I did with my doctor and It was only a few months ago that I was told I had neuropathy atrophy lymphedema did generative disc disease in my back slipped disc in the lower lumbar on the right and a benign kidney Tumor on my right kidney. I also have Concussion syndrome found out from my home care nurses that I should be getting checked out every year since I had laser surgery Cross Cancer Institute when I had cancer in 2000 and I haven’t been checked since my nurses are out raged and saw mine as my doctor said I didn’t need to be checked after they did a partial hysterectomy and shrunk my tumor that was in my eyes adamant but that was attached to my ovary and the size of a watermelon and 20 cm big they shrunk my ovaries down to the size of peas did a partial hysterectomy gave me injections every month for six months then a break for three months and then another six months then a break and then I said enough as I was so sick from it for so long and finally God willing the tumor was shrunk end and gone but I haven’t been checked since. I also have a steel which has really damage my bones my tunneling in the joints are two torn shoulder is my left shoulder has a bone that sticks out and broken toes I just broke one the other day I started it into something and it broke. I see every day is a struggle and some days may be all right you know tolerable but it’s how we make the best of those days it matters how we live those days that matters how we have quality of life that matters so we can live these precious moments and enjoy life for what it really is as tomorrow is never promised. We all ask why me why me that is the question we can answer maybe there’s a purpose maybe there’s a reason I don’t know I’m still here for a reason and I think God still has me here because he wants me to help people and I’ve always told people all my life even the jobs I did I helped people because I found it very heartwarming and it made me feel good to donate to those in need. I am make compromises every day I sit on a stool to do dishes or set up coffee or cook a meal I sit on a stool some days is really painful others is tolerable I do the best I can do to my abilities and I don’t let anyone put me down and make me feel less of a person because of that as I have had many experiences of that in the past. We all have to remember that we’re fighting cruel diseases with no cures, but it’s all we have. Each of us Need to be treated with proper care proper positivity quality of life learn to make compromises be her own advocate we know our own bodies fight for what you want help with as some doctors won’t they just brush it under the carpet but you’re his doctors out there that will help and you just have to access your community resources in your area if there’s low income people there’s ways you can go swimming and get us passes for cheap I know they do that in Canada I don’t know about the UK or other places by you guys all out there and wherever countries you’re from places check with your healthcare system and find out everything you can to help yourself so that you can get optimum care for a patient and proper care proper advice and feel part of a team that working altogether are proactive in helping you have a life of quality and mechanisms and tools that you could use to help in breathing for pain and relaxing enjoying nature and breathing in the fresh air and just learned taking one day at a time baby steps compromise your body to or do you situations so that your body can do what you can do so as you don’t overdo it and set yourself back. For pain medicines yes the side effects are horrible I get dizzy spells I am very off-balance I get very groggy I’ll follow sleep sitting up And I still wake up and I am painting yes I take a tour at all but I don’t take it or abuse that I only take it when I really feel like I’m in a lot of pain and I am and I did get my body tells me so as does yours so you know your pain you know about it can be you need for your doctors to know there’s make up page journal for the month if you see your doctor once a month make a food journal food triggers Can cause more pain and most of all always have an open communication and a positive one with your doctors and your family and friends your positivity team around you. Always remember there’s hope even when we think there is none the Lord is watching over us he’s protecting us I know we often all must ask him why Lord why are we suffering I’ve always wondered that too but I don’t think there’s really an answer I mean look at Jesus he suffered I don’t think that means we should but I don’t know that answer I believe that I’m still here even though I’m suffering to help other people to help others out there reach out to other people who are suffering like myself and be able to help them even if it’s with words of inspiration or prayers or just talking that’s with this support group is all about and I don’t just do this in the support group I do inspiration and prayers and my family and my friends and even with strangers and that strength from the Lord and my love for precious life and family spouses or not as long as you have some people in your life that are non-toxic willing to listen to you and really hear you be empathetic with you and educate you help you work with you as a team a good support network is totally needed in our situations and all of us can have that just see how do your community service is in your countries in your areas there is help out there you just have to reach out for it may the Lord bless you today and every day and may you enjoy the precious moments that we are granted every day Amen 🙏
Blood flow and circulation and lymphedema - Neuropathy Support
Blood flow and circulation and lymphedema
You’re so welcome I see I try to be inspirational and if he reaches out to one or 1000 people and I’m happy just to know if I can help somebody’s heart make it feel happier and make a difference in someone’s life I don’t care if I know anybody or not I am on here the same reason is you are and everybody else and I believe God still has me here to inspire and help other people and I believe that a long time and I still believe that and And I will keep using the Lords strength to help others and myself and she just stay hopeful and positive every day. God bless you and everyone today and may you all have a wonderful happy healthy life less pain or pain free day with precious moments and happiness and laughter and positivity amen
You’re so welcome I see I try to be inspirational and if he reaches out to one or 1000 people and I’m happy just to know if I can help somebody’s heart make it feel happier and make a difference in someone’s life I don’t care if I know anybody or not I am on here the same reason is you are and everybody else and I believe God still has me here to inspire and help other people and I believe that a long time and I still believe that and And I will keep using the Lords strength to help others and myself and she just stay hopeful and positive every day. God bless you and everyone today and may you all have a wonderful happy healthy life less pain or pain free day with precious moments and happiness and laughter and positivity amen
We sure do think alike and I love it! We’re kindred blessed spirits are souls filled with god’s love and prayers and hugs 🤗 amen 🙏 I am so blessed to have you as a wonderful friend and a blessing! Thank you for being you!
Peripheral neuropathy
Lots of symptoms.. migraines, fatigue, muscle twitching, difficulty with words, itchy rash and more.. really worried.. can anyone relate?
Baffled and 