My friend is still struggling to get a diagnosis. Can i ask if anyone have Polymyositis with visible swelling. She has had a ton on MRIs( showing Inflamation in muscles and around them), blood tests (all negative included auto immune panles), negative EMG.
Been on high level of Steroids for 9 months. diagnosis not held due to the swelling. So no treatment other than Steroids, (mycophenolate tried but did not work).
Thought i would reach out to see if anyone here had any advice or similar situation.
Thank you in Advance for your Kindness
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Angebuck
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Hello, I was diagnosed with polymyositis in November 2021. I experienced lots of swelling all over, in particular ankles, feet, lower legs and arms. I struggled to wear shoes and trousers were tight to pull up over my legs. Strange when in fact I could not eat and had lost over a stone in weight. I hope your friend receives the help she deserves.
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Hello to every sufferer fighting his/her way back to a kind of normality
Diagnosed with Polymyostis 
New looking for advice pls 
Hello! Advice on who to see
