Booked in for mri scan of all my limbs next week, Bloods were normal. Excersising 4 times a week but over last to years have struggled with stamina when excersising and tire so easily. Noticed 10 years ago when walking up a flight of stairs my thighs would feel heavy also when cycling up hill had to get off as power in thighs seemed to drain really quick.
muscles always feel tender and tight , even when doing nothing.
Has any one had similar symptoms before getting diagnosed with some form myotsis.
Regards A
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50guy
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Yes and for me it is a complex situation - I was eventually diagnosed with both anti-srp necrotizing myositis (auto-immune issue) and a late onset rare form of muscular dystophy (myofibrillar myositis type 4 (genetic issue). I, like you, probably noticed it first whist cycling, slowly progressing to the point where stairs are impossible. MRi shows muscle loss and fat replacement and muscle biopsy showed myositis induced changes
Do you suffer from really bad fatigue ? Also when cycling uphill power just drained then would get off bike , could get back on and 10 secs later it would happen again. Legs always feel tired when walking upstairs ( even though I gym 4 times a week. Sometimes I can excersise but muscles feel like it's the first time I've done it. All antibodies test have come back normal. Only abnormality is high IgA.
Would you describe a bit more how it made you feel .
Yes I first noticed issue when cycling-I found I lose energy half way up hills but after walking to top I could continue to cycle with no issues. Over time walking up stairs and slopes became impossible (currently use stair lift at home). Mobility is slowly going and fatigue is always high even without did much. No longer cycling 6 years ago I was doing 100mile events!
Never suffered cramps (recently aches have become an issue) but back has been an issue for sometime - could be due to calf/thighs/glutes being weaken more on the right than the left (always seen more impact on right then left). This leads to lopsided gate. Currently have to use ankle foot orthotic on right leg to control foot drop (due to impact of MD on calf and ankle). Also starting to see upper body impact. MRi shows about 50% of thigh muscles are gone (now replaced with fat).
I did not have any unusual symptoms, but I was doing a lot of stretching-mainly had fatigue and weakness. Aches and pains only came late in illness progress (after loss of a lot of muscle). Consultant thinks main driver in my case is the muscular dystrophy which requires a genetic test to confirm (think there is a panel for it). This is added to by the immune driven NAM. Like I said I’m positive in myositis panel and positive for MFM type 4 genetic defect
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Having chest pain
Hi, new here, and would like some help if you could please? :)
How do you get a firm Mysiotis diagnosis? What scans will show affects on muscles? 
Newly diagnosed with IBM
