IBM

[sickofpm]

looks like I have it. I wondered why nothing was making any difference to my condition. consultant is running through my background notes and biopsy again. hopefully whilst all this is going on some improvement could take place. wishful thinking maybe but I have to live in hope.

[Wighton]

Hi, from what you have said nothing was making a difference but I think you will need more work on muscle biopsy and maybe another one - so until then it's not IBM, not an easy time but hopefully something else will be found. Best wishes

[Jo-Goode Administrator]

As Wighton said your biopsy will have to be reviewed, perhaps by someone who has more experience reading biopsies; until then you remain undiagnosed.

[sickofpm in reply to Jo-Goode]

I agree, as of yet nothing is confirmed. however I was seen by Dr. Chanoy and he's warned me that's what we may be looking at. I await further tests.