New study for IBM: Has anyone been asked to... - Myositis UK

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New study for IBM

Les15 profile image
10 Replies

Has anyone been asked to attend a new study for 9weeks about psychological affects helping IBM sufferers

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Les15 profile image
Les15
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10 Replies
Jo-Goode profile image
Jo-GoodeAdministrator

clinicaltrials.gov/ct2/show...

Is it this study led by Dr Michael Rose?

Les15 profile image
Les15 in reply toJo-Goode

Yes it looks the same as this trial but there is no names on it, I'm putting my name forward there is nothing to lose by it, I've spoken to the research assistant.

JiffyLemmon1 profile image
JiffyLemmon1 in reply toLes15

Hi Les, me too, I started this study last week, finding it interesting. When you start you will be given info on all the doctors involved in the study.

Les15 profile image
Les15

Hi did you have to go to London or did you do everything online it would be a long journey for me as I live in the north east and the initial interview is only for 1 hour.

JiffyLemmon1 profile image
JiffyLemmon1 in reply toLes15

Hi Les, don't seem to have much luck with this site, only just seen your reply. I have nearly finished this study (final phone call next Thursday). I didn't have to go to London but have done it all online with weekly phone calls.

Not sure how I feel about it all, I found it pretty hard going and can't say I have felt any real improvement but think I'll read through all the paperwork again and see if it sinks in a bit more.

How have you got on, have you felt it has been of any benefit?

Les15 profile image
Les15 in reply toJiffyLemmon1

Regretfully I must inform you that my husband George Leslie Tate had a fall and died of a heart attack last Friday 29th September and would be grateful if his name could be unsubscribed from the mailing list

Mrs Valerie Tate

KevinBrennan profile image
KevinBrennan

Hi, if it's the same one. I am signed onto the trial/course from Kings College, London.

Les15 profile image
Les15 in reply toKevinBrennan

Hi It looks like the same study it's Kings College London, I've returned the forms accepting the offer.

KevinBrennan profile image
KevinBrennan in reply toLes15

my course has already commenced and I've been to London, worth the trip to meet the team etc.

Les15 profile image
Les15

Will see what they say I'm up in the northeast it's a long way to go for an hour or so.

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