Immune deficiency

[Linda3579]

I have been off of Ocrevus for a year now, but my immune system will not recover. I was previously on the infusions for 6 years. Has anyone else encountered this problem?

[kdali]

I believe there are a few posts here regarding B cell recovery times. If I remember correctly, some needed 2 years, and some are still waiting.

[Linda3579 in reply to kdali]

Thank you for your reply kdali. I haven’t been on this site very often as I have been sick a lot, and my son is fighting ALS. 🙏

[Haku949]

My son just started Ocrevus and so far we have not seeing these sort of issues. I wonder how others will reply!

[Linda3579 in reply to Haku949]

Wishing the best for your son. It’s so hard to watch your kids deal with illnesses. 🙏

[Elizt3]

my last infusion was February 2024. My lymphocyte count started to return in December but it’s still not within the normal range. My neurologist thinks in the next couple months it should be back to low normal.

[Linda3579 in reply to Elizt3]

Hi Elizt3, Thank you for your reply. It’s encouraging to know you are on your way back. Best wishes🙏

[erash]

I had the same problem and after almost 2 years I went up to the Mayo Clinic and saw an immunologist who said this is quite common with okra and some people never get back. She did some that my memory B cells were indeed intact still

[Linda3579 in reply to erash]

Thank you for your reply erash. My neurologist seemed surprised that I haven’t had any gains in my B cells after a year. It’s very interesting that the Mayo Clinic said it is quite common. My memory cells are definitely suffering. 😟. I did spend a week in the ICU with COVID. That’s when I quit Ocrevus. Stay well and mask up in crowds🙏

[erash in reply to Linda3579]

my neurologist said the same thing. And memory B cells are those that remember viruses and had before you started on

[Robsmom]

I was on for a little over 6 years and my last infusion was in July of 2023. This month when my PC did my labs , it was the first time everything was in the normal range. I have my MRI and annual Neuro visit Friday. Hopefully the labs will be good then too. I know they do different ones.🤞🏾

[Linda3579 in reply to Robsmom]

That’s very good news!! Thank you! 😀

[Linda3579 in reply to Robsmom]

🤞 Fingers crossed for a good report for you. 🙏